• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

唐氏综合征患儿父母的临时护理、压力、情绪提升与婚姻质量

Respite Care, Stress, Uplifts, and Marital Quality in Parents of Children with Down Syndrome.

作者信息

Norton Michelle, Dyches Tina Taylor, Harper James M, Roper Susanne Olsen, Caldarella Paul

机构信息

Crestview Elementary School, Davis School District, 185 W. Golden Ave, Layton, UT, 84041, USA.

Department of Counseling Psychology and Special Education, Brigham Young University, Provo, UT, 84602, USA.

出版信息

J Autism Dev Disord. 2016 Dec;46(12):3700-3711. doi: 10.1007/s10803-016-2902-6.

DOI:10.1007/s10803-016-2902-6
PMID:27655360
Abstract

Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related to wife/husband stress, which was in turn negatively related to wife/husband marital quality. Also, wife uplifts were positively related to both wife and husband marital quality. Husband uplifts were positively related to husband marital quality. Therefore, it is important that respite care is provided and accessible to parents of children with Down syndrome.

摘要

残疾儿童的父母面临着高压力和低婚姻质量的风险;因此,本研究对患有唐氏综合征儿童的夫妇(n = 112,儿童n = 120)进行了调查,评估喘息服务时长、压力和积极情绪提升与婚姻质量是否相关。结构方程模型表明,喘息服务时长与妻子/丈夫的压力呈负相关,而妻子/丈夫的压力又与妻子/丈夫的婚姻质量呈负相关。此外,妻子的积极情绪提升与妻子和丈夫的婚姻质量均呈正相关。丈夫的积极情绪提升与丈夫的婚姻质量呈正相关。因此,为唐氏综合征患儿的父母提供并使其能够获得喘息服务非常重要。

相似文献

1
Respite Care, Stress, Uplifts, and Marital Quality in Parents of Children with Down Syndrome.唐氏综合征患儿父母的临时护理、压力、情绪提升与婚姻质量
J Autism Dev Disord. 2016 Dec;46(12):3700-3711. doi: 10.1007/s10803-016-2902-6.
2
Respite care, marital quality, and stress in parents of children with autism spectrum disorders.自闭症谱系障碍儿童父母的暂息护理、婚姻质量和压力。
J Autism Dev Disord. 2013 Nov;43(11):2604-16. doi: 10.1007/s10803-013-1812-0.
3
Uplifts, Respite, Stress, and Marital Quality for Parents Raising Children With Down Syndrome or Autism.抚养患有唐氏综合征或自闭症孩子的父母的情绪提升、喘息机会、压力与婚姻质量
Intellect Dev Disabil. 2022 Apr 1;60(2):145-162. doi: 10.1352/1934-9556-60.2.145.
4
[The status of families with handicapped children form the perspective of parents].从父母角度看残疾儿童家庭的状况
Kinderkrankenschwester. 2010 Dec;29(12):513-5.
5
Links between marital and parent-child interactions: moderating role of husband-to-wife aggression.婚姻与亲子互动之间的联系:丈夫对妻子的攻击行为的调节作用。
Dev Psychopathol. 2004 Summer;16(3):753-71. doi: 10.1017/s0954579404004766.
6
Alcohol and the continuation of early marital aggression.酒精与早期婚姻攻击行为的持续存在
Alcohol Clin Exp Res. 2000 Jul;24(7):1003-10.
7
Respite Care for Single Mothers of Children with Autism Spectrum Disorders.为患有自闭症谱系障碍儿童的单身母亲提供的临时护理服务
J Autism Dev Disord. 2016 Mar;46(3):812-24. doi: 10.1007/s10803-015-2618-z.
8
Parental stress and marital relationships among patients with brain injury and their spouses.脑损伤患者及其配偶的父母压力和婚姻关系。
NeuroRehabilitation. 2011;28(4):321-30. doi: 10.3233/NRE-2011-0660.
9
Older spouses' cortisol responses to marital conflict: associations with demand/withdraw communication patterns.老年配偶对婚姻冲突的皮质醇反应:与要求/退缩沟通模式的关联。
J Behav Med. 2006 Aug;29(4):317-25. doi: 10.1007/s10865-006-9058-3. Epub 2006 Jun 20.
10
The long-term effects of children's early-onset disability on marital relationships.儿童早期残疾对婚姻关系的长期影响。
Dev Med Child Neurol. 1996 Jul;38(7):567-77. doi: 10.1111/j.1469-8749.1996.tb12121.x.

引用本文的文献

1
Trisomy 21 and Congenital Heart Disease: Impact on Health and Functional Outcomes From Birth Through Adolescence: A Scientific Statement From the American Heart Association.21 三体综合征与先天性心脏病:从出生到青少年时期对健康和功能结局的影响:美国心脏协会的科学声明。
J Am Heart Assoc. 2024 Oct;13(19):e036214. doi: 10.1161/JAHA.124.036214. Epub 2024 Sep 12.
2
Impact of Physical Activity on Autonomy and Quality of Life in Individuals with Down Syndrome: A Systematic Review.体育活动对唐氏综合征患者自主性和生活质量的影响:一项系统综述
Healthcare (Basel). 2024 Jan 11;12(2):181. doi: 10.3390/healthcare12020181.
3
Mental health and well-being of fathers of children with intellectual disabilities: systematic review and meta-analysis.

本文引用的文献

1
Respite care, marital quality, and stress in parents of children with autism spectrum disorders.自闭症谱系障碍儿童父母的暂息护理、婚姻质量和压力。
J Autism Dev Disord. 2013 Nov;43(11):2604-16. doi: 10.1007/s10803-013-1812-0.
2
Social support is associated with blood pressure responses in parents caring for children with developmental disabilities.社会支持与照顾发育障碍儿童的父母的血压反应有关。
Res Dev Disabil. 2012 Nov-Dec;33(6):2099-105. doi: 10.1016/j.ridd.2012.06.007. Epub 2012 Jul 7.
3
Parents of children with and without intellectual disability: couple relationship and individual well-being.
智障儿童父亲的心理健康与幸福:系统评价与荟萃分析
BJPsych Open. 2019 Nov 7;5(6):e96. doi: 10.1192/bjo.2019.75.
有智力残疾和无智力残疾儿童的父母:夫妻关系和个体幸福感。
J Intellect Disabil Res. 2013 Jun;57(6):552-66. doi: 10.1111/j.1365-2788.2012.01564.x. Epub 2012 Apr 25.
4
Family functioning in families with a child with Down syndrome: a mixed methods approach.唐氏综合征患儿家庭的家庭功能:混合方法研究。
J Intellect Disabil Res. 2012 Oct;56(10):961-73. doi: 10.1111/j.1365-2788.2012.01561.x. Epub 2012 Apr 25.
5
Sense making and benefit finding in couples who have a child with Asperger syndrome: an application of the Actor-Partner Interdependence Model.夫妻双方有一个孩子患有艾斯伯格综合征时的意义建构和获益探寻:应用互动模型分析。
Autism. 2012 May;16(3):275-92. doi: 10.1177/1362361311418691. Epub 2011 Sep 26.
6
The impacts of short break provision on families with a disabled child: an international literature review.短时间休息规定对残疾儿童家庭的影响:国际文献回顾。
Health Soc Care Community. 2011 Jul;19(4):337-71. doi: 10.1111/j.1365-2524.2010.00977.x. Epub 2010 Dec 22.
7
Asymptotic and resampling strategies for assessing and comparing indirect effects in multiple mediator models.用于评估和比较多重中介模型中间接效应的渐近和重抽样策略。
Behav Res Methods. 2008 Aug;40(3):879-91. doi: 10.3758/brm.40.3.879.
8
Adult siblings of individuals with Down syndrome versus with autism: findings from a large-scale US survey.唐氏综合征患者与自闭症患者的成年兄弟姐妹对比:来自美国一项大规模调查的结果。
J Intellect Disabil Res. 2007 Dec;51(Pt 12):1018-29. doi: 10.1111/j.1365-2788.2007.00994.x.
9
Maternal depression and developmental disability: research critique.母亲抑郁与发育障碍:研究评论
Ment Retard Dev Disabil Res Rev. 2007;13(4):321-9. doi: 10.1002/mrdd.20172.
10
Epidemiology of Down syndrome.唐氏综合征的流行病学
Ment Retard Dev Disabil Res Rev. 2007;13(3):221-7. doi: 10.1002/mrdd.20157.