唐氏综合征患儿父母的临时护理、压力、情绪提升与婚姻质量

Respite Care, Stress, Uplifts, and Marital Quality in Parents of Children with Down Syndrome.

作者信息

Norton Michelle, Dyches Tina Taylor, Harper James M, Roper Susanne Olsen, Caldarella Paul

机构信息

Crestview Elementary School, Davis School District, 185 W. Golden Ave, Layton, UT, 84041, USA.

Department of Counseling Psychology and Special Education, Brigham Young University, Provo, UT, 84602, USA.

出版信息

J Autism Dev Disord. 2016 Dec;46(12):3700-3711. doi: 10.1007/s10803-016-2902-6.

DOI:10.1007/s10803-016-2902-6

PMID:27655360

Abstract

Parents of children with disabilities are at risk for high stress and low marital quality; therefore, this study surveyed couples (n = 112) of children with Down syndrome (n = 120), assessing whether respite hours, stress, and uplifts were related to marital quality. Structural equation modeling indicated that respite hours were negatively related to wife/husband stress, which was in turn negatively related to wife/husband marital quality. Also, wife uplifts were positively related to both wife and husband marital quality. Husband uplifts were positively related to husband marital quality. Therefore, it is important that respite care is provided and accessible to parents of children with Down syndrome.

摘要

残疾儿童的父母面临着高压力和低婚姻质量的风险；因此，本研究对患有唐氏综合征儿童的夫妇（n = 112，儿童n = 120）进行了调查，评估喘息服务时长、压力和积极情绪提升与婚姻质量是否相关。结构方程模型表明，喘息服务时长与妻子/丈夫的压力呈负相关，而妻子/丈夫的压力又与妻子/丈夫的婚姻质量呈负相关。此外，妻子的积极情绪提升与妻子和丈夫的婚姻质量均呈正相关。丈夫的积极情绪提升与丈夫的婚姻质量呈正相关。因此，为唐氏综合征患儿的父母提供并使其能够获得喘息服务非常重要。