Division of Endocrinology, Department of Pediatrics, The Ohio State University College of Medicine, Columbus, Ohio.
Center for Biobehavioral Health, The Abigail Wexner Research Institute at Nationwide Children's Hospital, Columbus, Ohio.
Pediatr Blood Cancer. 2023 Sep;70 Suppl 5(Suppl 5):e28476. doi: 10.1002/pbc.28476. Epub 2020 Jul 6.
Despite being considered "standard of care" by many organizations, fertility and reproductive health communications and counseling practices remain inconsistent for adolescents and young adults (AYAs) newly diagnosed with cancer and during survivorship. One factor known to affect how information is provided and received in the medical setting is health literacy. Providers should consider health literacy to optimize reproductive health communication with AYAs as they cope with their diagnosis, understand what it means for their future, process information about treatment options, learn about their potential harmful effects on fertility, make quick decisions about fertility preservation, and navigate a future family planning course. Thus, the objectives of this manuscript are to (a) summarize literature on reproductive health literacy; (b) describe health literacy frameworks; (c) examine ways to assess health literacy; and (d) identify ways to enhance clinician-patient communication in the AYA oncofertility setting.
尽管许多组织认为这是“标准护理”，但对于新诊断出癌症的青少年和年轻人 (AYAs) 以及在生存期间，生育和生殖健康的沟通和咨询实践仍然不一致。已知影响医疗环境中信息提供和接收方式的一个因素是健康素养。提供者应该考虑健康素养，以优化与 AYAs 的生殖健康沟通，因为他们正在应对诊断，了解这对他们的未来意味着什么，处理有关治疗选择的信息，了解治疗对生育能力的潜在有害影响，快速做出有关生育力保存的决策，并规划未来的生育计划。因此，本手稿的目的是：(a) 总结生殖健康素养的文献；(b) 描述健康素养框架；(c) 研究评估健康素养的方法；以及 (d) 确定增强 AYA 肿瘤生育能力环境中医患沟通的方法。
