Goeman Dianne, Michael J, King J, Luu Huy, Emmanuel Claire, Koch S
RDNS Institute, Royal District Nursing Service Ltd, StKilda, Victoria, Australia.
Australian Vietnamese Women's Association, Richmond, Victoria, Australia.
BMJ Open. 2016 Sep 26;6(9):e011451. doi: 10.1136/bmjopen-2016-011451.
The aim of the Vietnamese Dementia talking-book was to address low health literacy in older people of Vietnamese background living with dementia through the provision of an online resource to help individuals, their families and carers better understand and manage this condition and provide information about available dementia services.
This qualitative study used codesign and participatory action research to develop and refine the talking-book in consultation with expert stakeholders, a consumer advocacy group and the Vietnamese community to assess its utility and ensure cultural and linguistic appropriateness and relevance.
59 members of the Vietnamese community, 11 stakeholders from community health services and ethnic agencies, consumer advocacy groups and the research team participated in the codesign and refinement of the talking-book. 22 members of the Vietnamese community appraised the final product.
Vietnamese community planned activity groups in the Western, Northern and Southern suburbs of Melbourne, Australia.
Our codesign study outlines the process required to develop a Vietnamese Dementia Talking-Book resource partnering with consumers and expert stakeholders to identify consumer need, selection of the content and appropriate language level, construction of the book, measuring acceptability of the talking-book, modification based on feedback and production and dissemination. Feedback on the final version of the talking-book revealed widespread consensus that the book enhanced the knowledge of members of the Vietnamese community in regard to understanding dementia and navigation and accessing of available services.
This free internationally available online Vietnamese Dementia Talking-Book facilitates improved dementia-related health literacy in the Vietnamese community. The book also serves as a tool to facilitate the provision of care to Vietnamese people living with memory loss by assisting health professional staff to develop relationships with Vietnamese clients, their families and carers in a culturally appropriate manner.
越南痴呆症有声读物的目的是，通过提供在线资源，帮助越南裔背景的老年痴呆症患者、其家人和护理人员更好地理解和管理这种疾病，并提供有关现有痴呆症服务的信息，以解决他们健康素养较低的问题。
这项定性研究采用协同设计和参与式行动研究方法，与专家利益相关者、消费者权益倡导组织及越南社区协商，开发并完善有声读物，以评估其效用，确保其在文化和语言方面的适宜性及相关性。
59名越南社区成员、11名来自社区卫生服务机构和民族机构、消费者权益倡导组织的利益相关者以及研究团队参与了有声读物的协同设计和完善工作。22名越南社区成员对最终产品进行了评估。
澳大利亚墨尔本西部、北部和南部郊区的越南社区计划活动小组。
我们的协同设计研究概述了开发越南痴呆症有声读物资源所需的过程，即与消费者和专家利益相关者合作，确定消费者需求、选择内容和合适的语言水平、编写书籍、评估有声读物的可接受性、根据反馈进行修改以及制作和传播。对有声读物最终版本的反馈显示，人们普遍认为该书提高了越南社区成员对痴呆症的理解以及对现有服务的导航和获取能力。
这本免费的、可在国际范围内获取的越南痴呆症有声读物有助于提高越南社区与痴呆症相关的健康素养。该书还可作为一种工具，通过帮助卫生专业人员以符合文化习惯的方式与越南客户及其家人和护理人员建立关系，促进为患有记忆丧失的越南人提供护理。
