Perazzo Joseph, Haas Stephen, Webel Allison, Voss Joachim
Frances Payne Bolton School of Nursing, Case Western Reserve University, 7828 Dearborn Ave, Cleveland, OH 45236.
University of Cincinnati, Cincinnati, OH.
Res Nurs Health. 2017 Feb;40(1):43-50. doi: 10.1002/nur.21769. Epub 2016 Sep 30.
People frequently use the internet to obtain information, including information about health, but we lack understanding of how people living with HIV (PLHIV) use the internet in their care and treatment decisions. In this secondary analysis, interviews with 23 individuals who initiated HIV care at an urban, Midwestern medical center and mentioned internet use were analyzed using qualitative content analysis to explore how they used the internet during the process of initiating HIV care. HIV care had been initiated by this sample from less than one month to three years post-diagnosis. Participants discussed the internet as a source of information about their diagnosis that influenced their care and treatment decisions. Five themes were predominant: (i) The internet alerted me to the possibility of HIV, (ii) the internet showed me a solution is available, (iii) the internet influenced my decisions about care, (iv) the internet empowered me to participate in my treatment decisions, and (v) the internet gave me hope for my future. The results suggest that the internet has the potential to provide information that can profoundly influence PLHIVs' acceptance of care and treatment decisions. Clinicians face a new reality in which patients use internet resources to obtain information and shape opinions about HIV treatment and care initiation decision-making. Guiding PLHIV in their selection of online resources is one approach to educating and empowering individuals as they cope with their diagnosis and contemplate decisions regarding HIV care and treatment. © 2016 Wiley Periodicals, Inc.
人们经常使用互联网获取信息,包括健康相关信息,但我们并不了解感染艾滋病毒的人(PLHIV)在其护理和治疗决策中如何使用互联网。在这项二次分析中,对在中西部城市医疗中心开始接受艾滋病毒护理并提及使用互联网的23人进行了访谈,采用定性内容分析法来探究他们在开始接受艾滋病毒护理过程中是如何使用互联网的。该样本在确诊后不到1个月至3年开始接受艾滋病毒护理。参与者将互联网视为有关其诊断的信息来源,这影响了他们的护理和治疗决策。五个主题最为突出:(i)互联网使我意识到感染艾滋病毒的可能性,(ii)互联网让我看到有解决办法,(iii)互联网影响了我对护理的决策,(iv)互联网使我有能力参与治疗决策,以及(v)互联网给了我对未来的希望。结果表明,互联网有可能提供能够深刻影响艾滋病毒感染者接受护理和治疗决策的信息。临床医生面临着一个新现实,即患者利用互联网资源获取信息并形成关于艾滋病毒治疗和护理起始决策的观点。指导艾滋病毒感染者选择在线资源是在他们应对诊断并思考有关艾滋病毒护理和治疗决策时对其进行教育和赋权的一种方式。© 2016威利期刊公司