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Exploring factors related to the adoption and acceptance of an internet-based electronic personal health management tool (EPHMT) in a low income, special needs population of people living with HIV and AIDS in New York City.探索纽约市低收入、有特殊需求的艾滋病毒/艾滋病感染者群体采用和接受基于互联网的电子个人健康管理工具(EPHMT)的相关因素。
Stud Health Technol Inform. 2014;201:145-52.
3
Online social networking for HIV education and prevention: a mixed-methods analysis.在线社交网络在艾滋病教育和预防中的应用:混合方法分析。
Sex Transm Dis. 2013 Feb;40(2):162-7. doi: 10.1097/OLQ.0b013e318278bd12.
4
The experiences, needs, and Internet use of women recently diagnosed with HIV.最近被诊断出感染 HIV 的女性的经历、需求和互联网使用情况。
J Assoc Nurses AIDS Care. 2012 Jul-Aug;23(4):329-38. doi: 10.1016/j.jana.2011.07.004. Epub 2011 Sep 15.
5
Internet health information seeking behavior and antiretroviral adherence in persons living with HIV/AIDS.互联网健康信息搜索行为与 HIV/AIDS 感染者的抗逆转录病毒药物依从性。
AIDS Patient Care STDS. 2011 Jul;25(7):445-9. doi: 10.1089/apc.2011.0027. Epub 2011 Jun 17.
6
Internet use, social networking, and HIV/AIDS risk for homeless adolescents.互联网使用、社交网络与无家可归青少年的艾滋病风险
J Adolesc Health. 2010 Dec;47(6):610-3. doi: 10.1016/j.jadohealth.2010.04.016. Epub 2010 Jun 23.
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Living with HIV/AIDS and use of online support groups.与 HIV/AIDS 共存及使用在线支持小组。
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Perceptions of HIV-related websites among persons recently diagnosed with HIV.新近被诊断出 HIV 感染者对 HIV 相关网站的认知。
AIDS Patient Care STDS. 2010 Feb;24(2):105-15. doi: 10.1089/apc.2009.0228.
9
Using the Internet to provide care for persons living with HIV.利用互联网为艾滋病毒感染者提供护理。
AIDS Patient Care STDS. 2009 Dec;23(12):1033-41. doi: 10.1089/apc.2009.0163.
10
The patient self-advocacy scale: measuring patient involvement in health care decision-making interactions.患者自我倡导量表:衡量患者在医疗保健决策互动中的参与度。
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互联网在艾滋病毒感染者启动治疗中的作用。

Role of the Internet in Care Initiation by People Living With HIV.

作者信息

Perazzo Joseph, Haas Stephen, Webel Allison, Voss Joachim

机构信息

Frances Payne Bolton School of Nursing, Case Western Reserve University, 7828 Dearborn Ave, Cleveland, OH 45236.

University of Cincinnati, Cincinnati, OH.

出版信息

Res Nurs Health. 2017 Feb;40(1):43-50. doi: 10.1002/nur.21769. Epub 2016 Sep 30.

DOI:10.1002/nur.21769
PMID:27686871
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5484040/
Abstract

People frequently use the internet to obtain information, including information about health, but we lack understanding of how people living with HIV (PLHIV) use the internet in their care and treatment decisions. In this secondary analysis, interviews with 23 individuals who initiated HIV care at an urban, Midwestern medical center and mentioned internet use were analyzed using qualitative content analysis to explore how they used the internet during the process of initiating HIV care. HIV care had been initiated by this sample from less than one month to three years post-diagnosis. Participants discussed the internet as a source of information about their diagnosis that influenced their care and treatment decisions. Five themes were predominant: (i) The internet alerted me to the possibility of HIV, (ii) the internet showed me a solution is available, (iii) the internet influenced my decisions about care, (iv) the internet empowered me to participate in my treatment decisions, and (v) the internet gave me hope for my future. The results suggest that the internet has the potential to provide information that can profoundly influence PLHIVs' acceptance of care and treatment decisions. Clinicians face a new reality in which patients use internet resources to obtain information and shape opinions about HIV treatment and care initiation decision-making. Guiding PLHIV in their selection of online resources is one approach to educating and empowering individuals as they cope with their diagnosis and contemplate decisions regarding HIV care and treatment. © 2016 Wiley Periodicals, Inc.

摘要

人们经常使用互联网获取信息,包括健康相关信息,但我们并不了解感染艾滋病毒的人(PLHIV)在其护理和治疗决策中如何使用互联网。在这项二次分析中,对在中西部城市医疗中心开始接受艾滋病毒护理并提及使用互联网的23人进行了访谈,采用定性内容分析法来探究他们在开始接受艾滋病毒护理过程中是如何使用互联网的。该样本在确诊后不到1个月至3年开始接受艾滋病毒护理。参与者将互联网视为有关其诊断的信息来源,这影响了他们的护理和治疗决策。五个主题最为突出:(i)互联网使我意识到感染艾滋病毒的可能性,(ii)互联网让我看到有解决办法,(iii)互联网影响了我对护理的决策,(iv)互联网使我有能力参与治疗决策,以及(v)互联网给了我对未来的希望。结果表明,互联网有可能提供能够深刻影响艾滋病毒感染者接受护理和治疗决策的信息。临床医生面临着一个新现实,即患者利用互联网资源获取信息并形成关于艾滋病毒治疗和护理起始决策的观点。指导艾滋病毒感染者选择在线资源是在他们应对诊断并思考有关艾滋病毒护理和治疗决策时对其进行教育和赋权的一种方式。© 2016威利期刊公司