Department of Epidemiology and Community Health, University of Minnesota, Minneapolis, Minnesota 55454, USA.
AIDS Patient Care STDS. 2009 Dec;23(12):1033-41. doi: 10.1089/apc.2009.0163.
There are no published reports on ways in which caregivers use the Internet to support people living with HIV/AIDS (PLWHA). Five hundred caregivers were recruited in a 5-week period to complete an online survey of demographic characteristics, Internet use, online health-seeking self-efficacy, and ways they used the Internet to support PLWHA. Caregivers were on average 39 years old, white, heterosexual, highly educated, and Internet-savvy. Most provided informal care only (e.g., as a friend; 78%), with the remainder divided among those who provided care exclusively as part of their job (11%) or in both informally and professionally (11%). Most (72%) respondents visited a general medical website for HIV information, and 44% shared information from the Internet with PLWHA. Compared to informal caregivers, caregivers whose roles were both informal and professional had greater odds of recently sharing information from the Internet with PLWHA (odds ratio [OR] = 2.03) and ever printing off information from a website to give to PLWHA (odds ratio [OR] = 3.87). Professional caregivers had higher odds of ever printing off information from a website to give to PLWHA (OR = 1.87), but lower odds of sending an e-mail with a website link (OR = 0.32) than informal caregivers. These findings suggest that websites providing HIV-related resources should consider the various ways in which caregivers use their content, and how utilization differs by role. More research is needed to understand how people providing care for PLWHA share information and support each other and the impact that doing so has on caregiver burden and treatment outcomes for PLWHA.
目前尚无关于护理人员如何利用互联网来支持艾滋病毒感染者/艾滋病患者（PLWHA）的报告。在 5 周内招募了 500 名护理人员，以完成一项关于人口统计学特征、互联网使用、在线健康搜索自我效能以及他们利用互联网支持 PLWHA 的方式的在线调查。护理人员的平均年龄为 39 岁，白人，异性恋，受过高等教育，精通互联网。大多数人仅提供非正式护理（例如，作为朋友；78％），其余的人则分为仅作为工作一部分提供护理的人（11％）或同时提供非正式和专业护理的人（11％）。大多数（72％）受访者访问了一个用于获取 HIV 信息的一般医疗网站，并且 44％的人与 PLWHA 分享了来自互联网的信息。与非正式护理人员相比，其角色既非正式又专业的护理人员最近与 PLWHA 分享来自互联网的信息的可能性更大（优势比[OR] = 2.03），并且曾经从网站打印信息以提供给 PLWHA 的可能性更大（优势比[OR] = 3.87）。专业护理人员从网站打印信息以提供给 PLWHA 的可能性更高（OR = 1.87），但发送带有网站链接的电子邮件的可能性更低（OR = 0.32）比非正式护理人员。这些发现表明，提供 HIV 相关资源的网站应该考虑护理人员使用其内容的各种方式，以及使用方式如何因角色而异。需要进行更多研究以了解为 PLWHA 提供护理的人员如何共享信息并相互支持，以及这样做对护理人员负担和 PLWHA 的治疗结果的影响。
