Maini Pranshu, Tersigni Claudia, Micsinszki Samantha K, Cairns Sarah, Murray Kate, Frost Karen
Faculty of Health Sciences, McMaster University, Hamilton, Ontario, Canada
Western University, Schulich School of Medicine & Dentistry, London, Ontario, Canada.
BMJ Open. 2025 Jul 22;15(7):e099534. doi: 10.1136/bmjopen-2025-099534.
The transition from paediatric to adult healthcare marks a pivotal period for chronically ill adolescents, as they transition from a highly supportive and family-oriented environment to an adult-oriented and a more individual-oriented healthcare system that places a greater emphasis on personal responsibility and independence. Parents, given their firsthand experience managing their child's healthcare, play a central role in ensuring a smooth and successful transition, yet their perspectives on the barriers and facilitators of this complex process remain vastly underexplored. This scoping review aims to assess and provide comprehensive insights into parents' perceptions of the successes and challenges during their adolescents' transition from paediatric to adult healthcare.
This scoping review is led by patient partners and will be guided by the Peters and the Joanna Briggs Institute guidelines for scoping reviews. The preliminary search strategy will be developed and calibrated in Ovid MEDLINE and will be subsequently replicated in the Cumulative Index to Nursing and Allied Health Literature (CINAHL), PsychInfo, Embase, Web of Science and Sociological Abstracts from inception through 18 December 2024, including all types of studies. Grey literature sources recommended by patient partners and clinical and qualitative research experts will also be included. Two reviewers will independently perform the title and abstract review of all studies against the predefined inclusion and exclusion criteria, followed by the full-text review of included studies. The reference list of all included studies will also be screened to maximise the retrieval of relevant sources. Data will be extracted and analysed quantitatively and qualitatively, with the study procedural and reporting format following Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews guidelines.
This scoping review, through the broad and systematic mapping of existing literature, aims to provide a foundation for developing targeted support systems, strategies and interventions to address the unique needs and barriers faced by parents and caregivers of chronically ill adolescents during this critical transition to adult care.
从儿科医疗向成人医疗的转变，对于慢性病青少年而言是一个关键时期，因为他们正从一个高度支持且以家庭为导向的环境，过渡到一个以成人为主且更注重个人的医疗体系，该体系更加强调个人责任和独立性。鉴于父母在管理孩子医疗保健方面的亲身经历，他们在确保顺利且成功的过渡过程中发挥着核心作用，然而，对于这一复杂过程中的障碍和促进因素，他们的观点仍未得到充分探讨。本综述旨在评估并全面洞察父母对于青少年从儿科医疗过渡到成人医疗过程中成功与挑战的看法。
本综述由患者合作伙伴牵头，并将遵循彼得斯和乔安娜·布里格斯研究所的综述指南进行。初步检索策略将在Ovid MEDLINE中制定和校准，随后在护理及相关健康文献累积索引（CINAHL）、心理学文摘数据库（PsychInfo）、医学与健康领域数据库（Embase）、科学引文索引（Web of Science）以及社会学文摘数据库中从创刊至2024年12月18日进行重复检索，包括所有类型的研究。患者合作伙伴以及临床和定性研究专家推荐的灰色文献来源也将被纳入。两名评审员将根据预先确定的纳入和排除标准，独立对所有研究进行标题和摘要评审，随后对纳入研究进行全文评审。所有纳入研究的参考文献列表也将进行筛选，以最大限度地检索相关文献。数据将进行定量和定性提取与分析，研究程序和报告格式遵循系统评价和Meta分析扩展版的综述指南（Preferred Reporting Items for Systematic reviews and Meta-Analyses extension for Scoping Reviews）。
本综述通过广泛且系统地梳理现有文献，旨在为开发有针对性的支持系统、策略和干预措施奠定基础，以满足慢性病青少年的父母和照顾者在向成人护理这一关键过渡阶段所面临的独特需求和障碍。
