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父母、儿童和青少年对慢性皮肤病的体验:一项元民族志研究及对定性文献的综述

Parental, child, and adolescent experience of chronic skin conditions: A meta-ethnography and review of the qualitative literature.

作者信息

Ablett Kate, Thompson Andrew R

机构信息

Clinical Psychology Unit, Department of Psychology, University of Sheffield, Western Bank, Sheffield, UK.

Clinical Psychology Unit, Department of Psychology, University of Sheffield, Western Bank, Sheffield, UK.

出版信息

Body Image. 2016 Dec;19:175-185. doi: 10.1016/j.bodyim.2016.10.001. Epub 2016 Oct 18.

DOI:10.1016/j.bodyim.2016.10.001
PMID:27768987
Abstract

Childhood skin conditions can affect the quality of life of children, adolescents, and families. As such, paediatric dermatological conditions have been the focus of a number of qualitative studies and there is now a need to integrate the findings. A meta-ethnography was carried out with the existing 12 studies, which included nine studies examining parental experiences and three studies of child experiences. Meta-ethnographic analysis of the studies identified themes focused on the child's sense of stigmatisation and the challenges for families that arose from this. Common experiences across studies were feelings of difference relating to the appearance of the skin. The results highlight that children and adolescents can experience negative social reactions and that parents may struggle with some aspects of the physical management of the condition. The studies indicate the need to examine in more detail the psychosocial aspects of childhood skin conditions and the role played by stigmatisation.

摘要

儿童皮肤疾病会影响儿童、青少年及其家庭的生活质量。因此,儿科皮肤病已成为多项定性研究的重点,现在有必要整合这些研究结果。我们对现有的12项研究进行了元民族志研究,其中包括9项考察家长经历的研究和3项关于儿童经历的研究。对这些研究的元民族志分析确定了一些主题,这些主题聚焦于儿童的耻辱感以及由此给家庭带来的挑战。各项研究的共同经历是与皮肤外观有关的差异感。结果表明,儿童和青少年可能会经历负面的社会反应,而且家长在疾病的身体管理方面可能会遇到一些困难。这些研究表明有必要更详细地研究儿童皮肤疾病的心理社会方面以及耻辱感所起的作用。

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