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中国西南地区家长对小儿唇裂一期修复术的满意度

Parent satisfaction with primary repair of paediatric cleft lip in Southwest China.

作者信息

Ha P, Li C, Shi B

机构信息

Department of Cleft Lip and Palate Surgery, West China Stomatology Hospital, Sichuan University, Chengdu, PR China.

Department of Cleft Lip and Palate Surgery, West China Stomatology Hospital, Sichuan University, Chengdu, PR China; State Key Laboratory of Oral Disease, West China Stomatology School, Sichuan University, Chengdu, PR China.

出版信息

Int J Oral Maxillofac Surg. 2017 Mar;46(3):281-285. doi: 10.1016/j.ijom.2016.09.024. Epub 2016 Oct 18.

DOI:10.1016/j.ijom.2016.09.024
PMID:27769737
Abstract

The purpose of this study was to investigate the key factors in relation to parent satisfaction with the primary repair of paediatric cleft lip. One hundred and ninety-five children born with cleft lip and/or palate aged between 3 months and 1 year were recruited, along with their caregivers. All patients underwent primary cleft lip repair, and a telephone interview was held with their main caregivers at 3 months postoperative. The level of satisfaction with each item included in a simplified Cleft Evaluation Profile was ascertained and recorded. Patient clinical data were obtained from the medical records. One hundred and thirty-eight (71%) parents reported satisfaction with the general outcome of surgery. Parents were satisfied with the appearance of the lip and profile of the face, but were dissatisfied with the appearance of the nose and teeth. Mothers of patients showed lower satisfaction levels than fathers and grandparents. Parental satisfaction with the appearance of the lip was lower for patients without a cleft palate than for those with a cleft palate. The results of this study suggest that most Chinese parents of children who undergo primary cleft lip repair express satisfaction with the surgical outcomes. Satisfaction with the appearance of the nose and teeth is low and this needs to be improved. Other factors are likely to influence expressions of satisfaction.

摘要

本研究的目的是调查与家长对小儿唇裂一期修复满意度相关的关键因素。招募了195名年龄在3个月至1岁之间患有唇裂和/或腭裂的儿童及其照顾者。所有患者均接受了唇裂一期修复,并在术后3个月对其主要照顾者进行了电话访谈。确定并记录了简化腭裂评估量表中每个项目的满意度水平。患者临床数据从病历中获取。138名(71%)家长对手术的总体结果表示满意。家长对唇部外观和面部轮廓满意,但对鼻子和牙齿的外观不满意。患者的母亲比父亲和祖父母的满意度更低。无腭裂患者家长对唇部外观的满意度低于有腭裂的患者。本研究结果表明,大多数接受唇裂一期修复的中国儿童家长对手术结果表示满意。对鼻子和牙齿外观的满意度较低,这需要改善。其他因素可能会影响满意度的表达。

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引用本文的文献

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Aesthetic Plast Surg. 2025 Sep 4. doi: 10.1007/s00266-025-05082-6.
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Assessment of symmetry and parental satisfaction after use of customized nasal conformers in unilateral cleft lip repair: a randomized controlled clinical trial.单侧唇裂修复术中使用定制鼻整形器后对称性及家长满意度评估:一项随机对照临床试验
Head Face Med. 2025 Aug 1;21(1):55. doi: 10.1186/s13005-025-00533-6.
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Caregiver-Reported Outcomes and Barriers to Care among Patients with Cleft Lip and Palate.
照顾者报告的唇腭裂患者的结果和护理障碍。
Plast Reconstr Surg. 2018 Dec;142(6):884e-891e. doi: 10.1097/PRS.0000000000004987.