Gullbrå Frøydis, Smith-Sivertsen Tone, Rortveit Guri, Anderssen Norman, Hafting Marit
Research Unit for General Practice, Uni Research Health, Bergen, Norway.
Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.
BMC Fam Pract. 2016 Nov 8;17(1):154. doi: 10.1186/s12875-016-0553-5.
Severe illness among parents may interfere with their parenting. Children having ill or substance-abusing parents are at risk of own health problems and psychosocial difficulties. The health care system should identify families in need of help and provide the help needed. For ill parents, it can be difficult to seek help and advices for their parenting. The aim of this study was to identify important factors for the general practitioner (GP) to bear in mind during encounters with ill and substance-abusing parents, to enable the GP to provide appropriate support for the children.
A qualitative approach was chosen and the data material was semi-structured individual interviews with 12 parents with mental illness, substance abuse or severe somatic illness. The participants were recruited through GPs in Norway, and the interviews were performed in 2014. We used systematic text condensation for analysis.
It was important for the participants that the GP was oriented about their family and children's situation. They wanted to be regarded as competent parents in ordinary families; however, they were aware that their illness affected their parenting. They expressed a need for advice about how to inform the children of their illness and talk to them about their challenges, and, if necessary, utilize helpers who could inform the children and talk to them directly. There were often many agencies involved, and it was important that the helpers cooperated and shared information. In addition, the parents were in need of information about support services.
Ill parents in this study conveyed a double message to their helpers. They wanted to be considered as responsible and well-intended parents who wished the best for their children. At the same time they needed support in parenting. The GP should take the time to listen to the parents' first spontaneous description about an ordinary daily life (while realising that it may not necessarily be an accurate report), then explore their worries and needs of support.
父母身患重病可能会影响其养育子女的方式。父母患有疾病或有药物滥用问题的孩子自身面临健康问题和心理社会困境的风险。医疗保健系统应识别有需要的家庭并提供所需帮助。对于患病的父母来说,寻求有关养育子女的帮助和建议可能会很困难。本研究的目的是确定全科医生(GP)在与患病及有药物滥用问题的父母接触时应牢记的重要因素,以便全科医生能够为孩子提供适当的支持。
采用定性研究方法,数据材料为对12位患有精神疾病、药物滥用或严重躯体疾病的父母进行的半结构化个人访谈。参与者通过挪威的全科医生招募,访谈于2014年进行。我们使用系统的文本浓缩法进行分析。
对参与者来说,全科医生了解他们的家庭和孩子的情况很重要。他们希望在普通家庭中被视为称职的父母;然而,他们意识到自己的疾病会影响养育子女。他们表示需要有关如何告知孩子自己的病情以及与孩子谈论他们所面临挑战的建议,并且在必要时利用能够告知孩子并直接与他们交谈的帮助者。通常涉及许多机构,帮助者之间的合作和信息共享很重要。此外,父母需要有关支持服务的信息。
本研究中的患病父母向他们的帮助者传达了双重信息。他们希望被视为对孩子负责且用心良苦的父母,希望给孩子最好的。与此同时,他们在养育子女方面需要支持。全科医生应该花时间倾听父母对普通日常生活的首次自发描述(同时意识到这不一定是准确的报告),然后探究他们的担忧和对支持的需求。