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多发性硬化症患者、照顾者和职业治疗师的焦点小组研究:匹配和接受辅助技术

Matching and accepting assistive technology in multiple sclerosis: A focus group study with people with multiple sclerosis, carers and occupational therapists.

机构信息

Bangor University, UK.

出版信息

J Health Psychol. 2019 Mar;24(4):480-494. doi: 10.1177/1359105316677293. Epub 2016 Nov 15.

Abstract

To explore experiences and perceptions of assistive technology, 14 people with multiple sclerosis, 5 carers and 4 occupational therapists participated in focus groups. Transcripts were analysed thematically drawing from illness self-regulation theory. Identified themes are as follows: critical multiple sclerosis events (developing symptoms/disability, delayed diagnosis and coping, public reaction and multiple sclerosis progression to assistive technology), matching assistive technology for continued use (acceptance of multiple sclerosis and assistive technology, realistic expectations, occupational therapist responsiveness, timing is crucial and carers and others) and impact of assistive technology (promoting or losing independence, stigma and embarrassment and redefining the carer). Acceptance and communication among those involved ensures assistive technology matches needs and maximises health and psychosocial outcomes.

摘要

为了探索辅助技术的经验和看法,14 名多发性硬化症患者、5 名护理人员和 4 名职业治疗师参加了焦点小组。从疾病自我调节理论出发,对转录本进行了主题分析。确定的主题如下:关键多发性硬化症事件(出现症状/残疾、延迟诊断和应对、公众反应以及多发性硬化症进展到辅助技术)、匹配辅助技术以持续使用(接受多发性硬化症和辅助技术、现实期望、职业治疗师的反应、时间至关重要以及护理人员和其他人)和辅助技术的影响(促进或失去独立性、耻辱感和尴尬感以及重新定义护理人员)。相关人员的接受和沟通确保辅助技术满足需求,并最大限度地提高健康和心理社会结果。

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