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哮喘儿童和青少年的生活质量:问卷《儿童生活质量(PedsQL)哮喘模块》的葡萄牙语翻译、改编及验证

Quality of life of asthmatic children and adolescents: Portuguese translation, adaptation, and validation of the questionnaire "Pediatric Quality of Life (PedsQL) Asthma Module".

作者信息

Monteiro Fernanda Pereira, Solé Dirceu, Wandalsen Gustavo

机构信息

a Federal University of São Paulo (UNIFESP)-Master of Pediatrics and Sciences Applied to Pediatrics , Sao Paulo , Brazil.

b Discipline of Allergy, Clinical Immunology and Rheumatology, UNIFESP , Sao Paulo , Brazil.

出版信息

J Asthma. 2017 Nov;54(9):983-989. doi: 10.1080/02770903.2016.1277543. Epub 2017 Jan 5.

DOI:10.1080/02770903.2016.1277543
PMID:28055276
Abstract

OBJECTIVE

The objectives of the study were to translate, validate, and verify the psychometric properties of the Portuguese version of the instrument "Pediatric Quality of Life Asthma Module" (PedsQL Asthma) culturally adapted for the Brazilian culture.

METHODS

After being translated to Portuguese and being culturally adapted, the questionnaire was answered by 200 asthmatic children and adolescents (aged 2-18) as well as the adults responsible for them. Validation required the use of the following instruments: PedsQL Asthma Children (applied to children and adolescents), PedsQL Asthma Parents (applied to adults responsible for children and adolescents), Pediatric Asthma Quality of Life (PAQLQ), Asthma Control Test (ACT) or Childhood Asthma Control Test (C-ACT), as well as socioeconomic and personal information questionnaires. A group of 45 clinically stable children repeated the questionnaires 15-60 days after answering the first questionnaire.

RESULTS

Correlations between the scores of PedsQL Children and PedsQL Parents (r  =  0.67), PedsQL Children and PAQLQ (r  =  0.66), and PedsQL Parents and PAQLQ (r  =  0.64) were moderate and significant. Correlations were higher for men (r  =  0.72) when analyzing the children's and parents' answers to PedsQL according to gender. The 5- to 7-year-old age group had the strongest correlations with PAQLQ (r  =  0.79). Cronbach's alpha coefficient for PedsQL Children and Parents had values of 0.85 and 0.87, respectively. A high concordance was observed in both tests at different times, with kappa values of 0.89 and 0.87 for PedsQL Children and Parents, respectively.

CONCLUSION

The instrument used in this study was considered valid, consistent, and reproducible and has acceptable psychometric properties for the Brazilian population.

摘要

目的

本研究的目的是翻译、验证并核实经文化调适以适应巴西文化的葡萄牙语版“儿童哮喘生活质量模块”(PedsQL哮喘量表)的心理测量特性。

方法

问卷被翻译成葡萄牙语并进行文化调适后,由200名哮喘儿童和青少年(2至18岁)及其负责的成年人作答。验证需要使用以下工具:儿童PedsQL哮喘量表(应用于儿童和青少年)、家长PedsQL哮喘量表(应用于负责儿童和青少年的成年人)、儿童哮喘生活质量量表(PAQLQ)、哮喘控制测试(ACT)或儿童哮喘控制测试(C-ACT),以及社会经济和个人信息问卷。一组45名临床症状稳定的儿童在回答第一份问卷15至60天后再次填写问卷。

结果

儿童PedsQL量表得分与家长PedsQL量表得分之间的相关性(r = 0.67)、儿童PedsQL量表得分与PAQLQ得分之间的相关性(r = 0.66)以及家长PedsQL量表得分与PAQLQ得分之间的相关性(r = 0.64)为中等且显著。根据性别分析儿童和家长对PedsQL量表的回答时,男性的相关性更高(r = 0.72)。5至7岁年龄组与PAQLQ的相关性最强(r = 0.79)。儿童和家长PedsQL量表的克朗巴哈α系数分别为0.85和0.87。在不同时间的两次测试中均观察到高度一致性,儿童和家长PedsQL量表的kappa值分别为0.89和0.87。

结论

本研究中使用的工具被认为是有效、一致且可重复的,并且对巴西人群具有可接受的心理测量特性。

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