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“不仅仅是一位普通母亲”:对为围产期丧子后再次怀孕的女性提供的支持服务的质性研究

"Not just a normal mum": a qualitative investigation of a support service for women who are pregnant subsequent to perinatal loss.

作者信息

Meredith Pamela, Wilson Trish, Branjerdporn Grace, Strong Jenny, Desha Laura

机构信息

Occupational Therapy, School of Health and Rehabilitation Sciences, The University of Queensland, St Lucia, QLD, 4072, Australia.

Bereavement Support Service, Mater Mothers Hospital, South Brisbane, QLD, Australia.

出版信息

BMC Pregnancy Childbirth. 2017 Jan 5;17(1):6. doi: 10.1186/s12884-016-1200-9.

DOI:10.1186/s12884-016-1200-9
PMID:28056861
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5217635/
Abstract

BACKGROUND

Following previous perinatal loss, women in a subsequent pregnancy may experience heightened emotions, such as anxiety and fear, with a range of longer-term implications. To support these women, the Mater Mothers' Bereavement Support Service in Brisbane, Australia, developed a Pregnancy After Loss Clinic (PALC) as a specialised hospital-based service. The present study investigated the experiences of mothers with previous perinatal loss in relation to: (a) their subsequent pregnancy-to-birth journey, and (b) the PALC service. Such research seeks to inform the ongoing development of effective perinatal services.

METHOD

A qualitative interview-based research design was employed with a purposive sample of 10 mothers who had previously experienced perinatal loss and who attended the Mater Mothers' PALC during their subsequent pregnancy in 2015. All mothers had subsequently delivered a live baby and were in a relationship with the father of the new baby. Women were aged between 22 and 39 years, primiparous or multiparous, and from a range of cultural backgrounds. Semi-structured interviews, conducted either at the hospital or by telephone by an experienced, independent researcher, lasted between 20 min and one hour. All interviews were audio-recorded and transcribed verbatim, with participant names changed. Interviews were analysed using content analysis by two researchers who were not involved in the service delivery or data gathering process.

RESULTS

Seven themes were identified from the interview material: The overall experience, The unique experience of first pregnancy after loss, Support from PALC, Experiences of other services, Recommendations for PALC services, Need for alternative services, and Advice: Mother to mother.

CONCLUSIONS

Participants spoke positively of the PALC services for themselves and their families. Anxieties over their subsequent pregnancy, and the desire for other health professionals to be more understanding were frequently raised. Recommendations were made to extend the PALC service and to develop similar services to support access for other families experiencing perinatal loss.

摘要

背景

在经历过先前的围产期损失后,女性在随后的孕期可能会出现情绪加剧的情况,如焦虑和恐惧,这会产生一系列长期影响。为了帮助这些女性,澳大利亚布里斯班的玛特母婴哀伤支持服务中心设立了失后妊娠诊所(PALC),作为一项专门的医院服务。本研究调查了有过围产期损失经历的母亲在以下方面的体验:(a)她们随后的怀孕至分娩过程,以及(b)PALC服务。此类研究旨在为有效的围产期服务的持续发展提供信息。

方法

采用基于定性访谈的研究设计,对10名有过围产期损失经历且在2015年随后孕期前往玛特母婴PALC就诊的母亲进行了目的抽样。所有母亲随后都生下了活产婴儿,并且与新生婴儿的父亲保持着关系。这些女性年龄在22至39岁之间,初产妇或经产妇,来自不同文化背景。由一名经验丰富的独立研究人员在医院或通过电话进行半结构化访谈,访谈持续20分钟至1小时。所有访谈都进行了录音并逐字转录,参与者姓名已更改。两名未参与服务提供或数据收集过程的研究人员使用内容分析法对访谈进行了分析。

结果

从访谈材料中确定了七个主题:总体体验、失后首次怀孕的独特体验、来自PALC的支持、其他服务的体验、对PALC服务的建议、对替代服务的需求以及建议:母亲之间的交流。

结论

参与者对PALC为她们自己和家人提供的服务给予了积极评价。她们经常提到对随后怀孕的焦虑,以及希望其他医护人员能更理解她们的愿望。研究提出了扩展PALC服务并开发类似服务以支持其他经历围产期损失的家庭的建议。

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