Silver Julie K, Raj Vishwa S, Fu Jack B, Wisotzky Eric M, Smith Sean Robinson, Knowlton Sasha E, Silver Alexander J
Harvard Medical School, Department of Physical Medicine and Rehabilitation & Spaulding Rehabilitation Hospital, Massachusetts General Hospital and Brigham and Women's Hospital, 300 1st Avenue, Charlestown, MA, 02025, USA.
Department of Physical Medicine and Rehabilitation, Carolinas Rehabilitation, 1100 Blythe Boulevard, Charlotte, NC, 28203, USA.
J Cancer Educ. 2018 Oct;33(5):947-953. doi: 10.1007/s13187-016-1157-4.
This study is the first to evaluate the existence and quality of patient-related cancer rehabilitation content on the websites of National Cancer Institute (NCI)-Designated Cancer Centers. In 2016, a team of cancer rehabilitation physicians (physiatrists) conducted an analysis of the patient-related rehabilitation content on the websites of all NCI-Designated Cancer Centers that provide clinical care (N = 62 of 69). The main outcome measures included qualitative rating of the ease of locating descriptions of cancer rehabilitation services on each website, followed by quantitative rating of the quality of the cancer rehabilitation descriptions found. More than 90% of NCI-Designated Cancer Centers providing clinical care did not have an easily identifiable patient-focused description of or link to cancer rehabilitation services on their website. Use of a website's search box and predetermined terms yielded an additional 13 descriptions (21%). Therefore, designers of nearly 70% of the websites evaluated overlooked an opportunity to present a description of cancer rehabilitation services. Moreover, only 8% of the websites included accurate and detailed information that referenced four core rehabilitation services (physiatry and physical, occupational and speech therapy). Further research is needed to confirm the presence of cancer rehabilitation services and evaluate access to these types of services at NCI-Designated Cancer Centers providing clinical care.
本研究首次评估了美国国立癌症研究所(NCI)指定癌症中心网站上与患者相关的癌症康复内容的存在情况和质量。2016年,一组癌症康复医生(物理医学与康复医生)对所有提供临床护理的NCI指定癌症中心网站上与患者相关的康复内容进行了分析(69家中心中的62家)。主要结局指标包括对每个网站上查找癌症康复服务描述的难易程度进行定性评分,随后对找到的癌症康复描述的质量进行定量评分。超过90%提供临床护理的NCI指定癌症中心在其网站上没有易于识别的以患者为中心的癌症康复服务描述或链接。使用网站的搜索框和预定术语又找到了13条描述(占21%)。因此,近70%被评估网站的设计者忽略了提供癌症康复服务描述的机会。此外,只有8%的网站包含了准确且详细的信息,提及了四项核心康复服务(物理医学与康复以及物理、职业和言语治疗)。需要进一步研究以确认NCI指定的提供临床护理的癌症中心是否存在癌症康复服务,并评估获得这类服务的途径。