1Department of Surgery, Northwestern University, Feinberg School of Medicine, Chicago, Illinois 2Department of Surgery, University of Toronto, Toronto, Ontario, Canada 3Keenan Research Centre, Li Ka Shing Knowledge Institute, St Michael's Hospital, Toronto, Ontario, Canada.
Dis Colon Rectum. 2014 Jan;57(1):64-9. doi: 10.1097/DCR.0000000000000011.
Patients diagnosed with colorectal cancer often seek information on the Internet to help them make treatment decisions.
The aim of this study is to evaluate the quality of Web-based patient information regarding surgery for colorectal cancer.
This study is a cross-sectional survey of patient-directed Web sites.
The search engine Google (Mountain View, CA) and the search terms "colorectal cancer surgery," "colon cancer surgery," and "rectal cancer surgery" were used to identify Web sites.
To assess quality, we used the DISCERN instrument, a validated questionnaire developed to analyze written consumer health information on treatment options to aid consumers in evaluating the quality of health-related information on treatment choices for a specific health problem. An additional colorectal cancer-specific questionnaire was used to evaluate Web site content for colorectal cancer surgical treatment. Two independent assessors reviewed each Web site.
Searches revealed a total of 91 distinct Web sites, of which 37 met inclusion criteria. Web site affiliation was as follows: 32% open-access general information, 24% hospital/health care organization, and 19% professional medical society. Twelve (32.4%) Web sites had clear aims, 10 (27.0%) had identifiable references to their sources of information, and 9 (24.3%) noted the date of published information. Ten sites (27.0%) provided some description of the surgical procedure, 8 (21.6%) discussed either the risks or the benefits of surgery, and 4 (10.8%) addressed quality-of-life issues. Nineteen (51.4%) Web sites discussed postoperative complications, and 7 (18.9%) discussed stoma-related maintenance/care.
The small sample size and interrater reliability bias are limitations of this study.
The quality of online patient information regarding colorectal cancer treatment is highly variable, often incomplete, and does not adequately convey the information necessary for patients to make well-informed medical decisions regarding treatment for colorectal cancer. An opportunity exists for professional medical societies to create more comprehensive online patient information materials that may serve as a resource to physicians and their patients (see Video, Supplemental Digital Content 1, http://links.lww.com/DCR/A122).
被诊断为结直肠癌的患者经常上网查询信息，以帮助他们做出治疗决策。
本研究旨在评估针对结直肠癌手术的网络患者信息的质量。
这是一项针对面向患者的网站的横断面调查研究。
搜索引擎 Google（加利福尼亚州山景城）和搜索词“结直肠癌手术”“结肠癌手术”和“直肠癌手术”用于识别网站。
为了评估质量，我们使用了 DISCERN 工具，这是一种经过验证的问卷，用于分析针对治疗选择的书面消费者健康信息，以帮助消费者评估针对特定健康问题的治疗选择的健康相关信息的质量。还使用了一个额外的结直肠癌专用问卷来评估针对结直肠癌手术治疗的网站内容。两名独立评估员审查了每个网站。
搜索共发现 91 个不同的网站，其中 37 个符合纳入标准。网站隶属关系如下：32%为开放获取的一般信息，24%为医院/医疗保健组织，19%为专业医学协会。12 个（32.4%）网站有明确的目标，10 个（27.0%）有明确的信息来源参考，9 个（24.3%）记录了发布信息的日期。10 个网站（27.0%）对手术过程有一些描述，8 个（21.6%）讨论了手术的风险或益处，4 个（10.8%）涉及生活质量问题。19 个（51.4%）网站讨论了术后并发症，7 个（18.9%）讨论了造口相关的维护/护理。
本研究的局限性是样本量小和评估者间可靠性偏差。
关于结直肠癌治疗的在线患者信息质量差异很大，往往不完整，不能充分传达患者做出明智的医疗决策所需的信息，以便对结直肠癌的治疗做出决策。专业医学协会有机会创建更全面的在线患者信息材料，这些材料可能成为医生及其患者的资源（参见视频，补充数字内容 1，http://links.lww.com/DCR/A122）。
