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本文引用的文献

1
Imputing Missing Race/Ethnicity in Pediatric Electronic Health Records: Reducing Bias with Use of U.S. Census Location and Surname Data.推算儿科电子健康记录中缺失的种族/民族信息:利用美国人口普查地点和姓氏数据减少偏差
Health Serv Res. 2015 Aug;50(4):946-60. doi: 10.1111/1475-6773.12295. Epub 2015 Mar 11.
2
Using the Bayesian Improved Surname Geocoding Method (BISG) to create a working classification of race and ethnicity in a diverse managed care population: a validation study.采用贝叶斯改进姓氏地理编码方法(BISG)对多元化管理式医疗人群进行种族和民族的工作分类:验证研究。
Health Serv Res. 2014 Feb;49(1):268-83. doi: 10.1111/1475-6773.12089. Epub 2013 Jul 16.
3
Reporting CAHPS and HEDIS data by race/ethnicity for Medicare beneficiaries.报告医疗保险受益人的 CAHPS 和 HEDIS 数据按种族/族裔划分。
Health Serv Res. 2013 Apr;48(2 Pt 1):417-34. doi: 10.1111/j.1475-6773.2012.01452.x. Epub 2012 Aug 2.
4
Race and ethnicity data quality and imputation using U.S. Census data in an integrated health system: the Kaiser Permanente Southern California experience.在美国综合医疗体系中使用美国人口普查数据提高种族和民族数据质量和填补空缺值:凯撒永久南加州的经验。
Med Care Res Rev. 2013 Jun;70(3):330-45. doi: 10.1177/1077558712466293. Epub 2012 Nov 20.
5
Advancing health care equity through improved data collection.通过改进数据收集促进医疗保健公平。
N Engl J Med. 2011 Jun 16;364(24):2276-7. doi: 10.1056/NEJMp1103069.
6
Building bridges between medical care and public health.搭建医疗保健与公共卫生之间的桥梁。
JAMA. 2009 Jul 1;302(1):84-6. doi: 10.1001/jama.2009.959.
7
The National Health Plan Collaborative to Reduce Disparities and Improve Quality.国家卫生计划协作组织,旨在减少差异并提高质量。
Jt Comm J Qual Patient Saf. 2008 May;34(5):256-65. doi: 10.1016/s1553-7250(08)34032-x.
8
A new method for estimating race/ethnicity and associated disparities where administrative records lack self-reported race/ethnicity.一种新的方法,用于估计种族/民族以及在行政记录缺乏自我报告的种族/民族信息的情况下相关的差异。
Health Serv Res. 2008 Oct;43(5 Pt 1):1722-36. doi: 10.1111/j.1475-6773.2008.00854.x. Epub 2008 May 12.
9
Use of geocoding and surname analysis to estimate race and ethnicity.使用地理编码和姓氏分析来估计种族和族裔。
Health Serv Res. 2006 Aug;41(4 Pt 1):1482-500. doi: 10.1111/j.1475-6773.2006.00551.x.

当种族/族裔数据缺失时:使用先进的间接估计方法来衡量差异。

When Race/Ethnicity Data Are Lacking: Using Advanced Indirect Estimation Methods to Measure Disparities.

作者信息

Fremont Allen, Weissman Joel S, Hoch Emily, Elliott Marc N

出版信息

Rand Health Q. 2016 Jun 20;6(1):16.

PMID:28083444
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5158280/
Abstract

A key aim of U.S. health care reforms is to ensure equitable care while improving quality for all Americans. Limited race/ethnicity data in health care records hamper efforts to meet this goal. Despite improvements in access and quality, gaps persist, particularly among persons belonging to racial/ethnic minority and low-income groups. This study describes the use of indirect estimation methods to produce probabilistic estimates of racial/ethnic populations to monitor health care utilization and improvement. One method described, called Bayesian Indirect Surname Geocoding, uses a person's Census surname and the racial/ethnic composition of their neighborhood to produce a set of probabilities that a given person belongs to one of a set of mutually exclusive racial/ethnic groups. Advances in methods for estimating race/ethnicity are enabling health plans and other health care organizations to overcome a long-standing barrier to routine monitoring and actions to reduce disparities in care. Though these new estimation methods are promising, practical knowledge and guidance on how to most effectively apply newly available race/ethnicity data to address disparities can be greatly extended.

摘要

美国医疗保健改革的一个关键目标是在提高所有美国人医疗质量的同时确保公平医疗。医疗记录中有限的种族/族裔数据阻碍了实现这一目标的努力。尽管在医疗可及性和质量方面有所改善,但差距依然存在,尤其是在少数种族/族裔和低收入群体中。本研究描述了使用间接估计方法来生成种族/族裔人口的概率估计,以监测医疗保健利用情况和改善情况。所描述的一种方法称为贝叶斯间接姓氏地理编码,它利用一个人的人口普查姓氏及其邻里的种族/族裔构成,来生成给定个体属于一组互斥种族/族裔群体之一的一组概率。估计种族/族裔方法的进步使健康计划和其他医疗保健组织能够克服长期存在的常规监测障碍以及采取行动减少医疗差距。尽管这些新的估计方法很有前景,但关于如何最有效地应用新获得的种族/族裔数据来解决差距的实践知识和指导仍可大幅扩展。