Rohrmoser Amy, Preisler Martina, Bär Konrad, Letsch Anne, Goerling Ute
Medical Department, Division of Hematology and Oncology, Campus Benjamin Franklin, Charité-Universitätsmedizin Berlin, Hindenburgdamm 30, 12200, Berlin, Germany.
Charité Comprehensive Cancer Center, Charité-Universitätsmedizin Berlin, Invalidenstr. 80, 10115, Berlin, Germany.
Support Care Cancer. 2017 May;25(5):1621-1627. doi: 10.1007/s00520-017-3587-x. Epub 2017 Jan 17.
Delivering palliative/supportive cancer care (PSCC) early in the course of cancer care can enhance patients' and caregivers' quality of life, reduce anxiety and depression, and prolong patients' lives. However, their support needs are analyzed insufficiently from viewpoints other than their own. The goal of this study was to explore the perspectives of healthcare professionals on desirable standards of support for tumor patients and caregivers across the cancer treatment trajectory. It further aimed at identifying starting points for PSCC to address these needs.
Nine healthcare professionals of varying disciplines in a large German university hospital each participated in one of two focus groups. The qualitative data was analyzed following the grounded theory methodology.
The healthcare professionals described it as desirable standards that tumor patients and caregivers receive support coping with tasks, accepting the situation, generating strength, feeling trust, and gaining clarity, thus increasing their sense of control. These support needs were seen as important throughout the whole cancer treatment trajectory of tumor patients and their caregivers.
Team meetings, supervision, tailored education, and structural improvements may aid healthcare professionals to develop and implement ways to further support patients and caregivers. Also, patients' and caregivers' support needs should be screened regularly, e.g., when treatment phases change. This would complement healthcare professionals' subjective theories of relevant needs during a specific treatment phase.
在癌症治疗过程早期提供姑息/支持性癌症护理（PSCC）可提高患者及其护理人员的生活质量，减轻焦虑和抑郁，并延长患者生命。然而，从他们自身以外的角度对他们的支持需求分析不足。本研究的目的是探讨医疗保健专业人员对肿瘤患者及其护理人员在整个癌症治疗过程中理想支持标准的看法。它还旨在确定满足这些需求的PSCC的起点。
德国一家大型大学医院的九名不同学科的医疗保健专业人员分别参加了两个焦点小组中的一个。定性数据采用扎根理论方法进行分析。
医疗保健专业人员将肿瘤患者及其护理人员获得支持以应对任务、接受现状、增强力量、感受信任和获得清晰认知，从而增强他们的控制感描述为理想标准。在肿瘤患者及其护理人员的整个癌症治疗过程中，这些支持需求都被视为重要的。
团队会议、监督、量身定制的教育和结构改进可能有助于医疗保健专业人员制定和实施进一步支持患者及其护理人员的方法。此外，应定期筛查患者及其护理人员的支持需求，例如在治疗阶段发生变化时。这将补充医疗保健专业人员在特定治疗阶段对相关需求的主观理论。
