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将患者关注点纳入帕金森病管理。

Integrating Patient Concerns into Parkinson's Disease Management.

机构信息

Division of Neurology, University of Malaya, Kuala Lumpur, Malaysia.

Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, University of Malaya, Kuala Lumpur, Malaysia.

出版信息

Curr Neurol Neurosci Rep. 2017 Jan;17(1):3. doi: 10.1007/s11910-017-0717-2.

Abstract

Parkinson's disease (PD) is a complex motor and non-motor disorder and management is often challenging. In this review, we explore emerging approaches to improve the care of patients, drawing from the literature regarding patient-centred care, patient and caregiver perspectives and priorities, gaps in knowledge among patients and caregivers and the need for accurate information, individual variability in disease manifestations, prognostication of disease course, new developments in health technologies and personalized medicine, specialty care, pharmacological and non-pharmacological management, financial burden, lifestyle and work-related issues, support groups and palliative care.

摘要

帕金森病(PD)是一种复杂的运动和非运动障碍,其管理通常具有挑战性。在这篇综述中,我们从关注患者的护理、患者和照护者的观点和优先事项、患者和照护者知识差距以及对准确信息的需求、疾病表现的个体差异、疾病进程的预测、健康技术和个性化医学的新进展、专科护理、药物和非药物治疗、经济负担、生活方式和工作相关问题、支持小组和姑息治疗等方面的文献中,探讨了改善患者护理的新方法。

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