Medyńska Anna, Zwolińska Danuta, Grenda Ryszard, Miklaszewska Monika, Szczepańska Maria, Urzykowska Agnieszka, Zachwieja Katarzyna, Kiliś-Pstrusińska Katarzyna
Department of Pediatric Nephrology, Wroclaw Medical University, Wroclaw, Poland.
Department of Nephrology, Kidney Transplantation and Hypertension, Children's Memorial Health Institute, Warsaw, Poland.
Hemodial Int. 2017 Oct;21(4):557-565. doi: 10.1111/hdi.12526. Epub 2017 Jan 23.
The aim of this study was to analyze the selected psychosocial aspects of chronic kidney disease in children treated with hemodialysis (HD).
The study included 25 children treated with HD aged 2 to 18 years and their parents. Data concerning the illness and socio-demographic parameters was collected. We used the Paediatric Quality of Life Inventory (PedsQL) for patients and for their parents the PedsQL-proxy version, General Health Questionnaire (GHQ-12), Berlin Social Support Scales (BSSS), and the Caregivers Burden Scale (CBS) to evaluate health-related quality of life (QoL) of HD children and their primary caregivers.
In the PedsQL test, the QoL of HD children was lower than in healthy children. Children treated with HD assessed their QoL on the PedsQL questionnaire higher than the primary caregivers, on all subscales as well as an overall health-related QoL. Scoring below 2 on the GHQ-12 test was reported in 56% of mothers, which may indicate that psychological symptoms have intensified. There was no correlation between BSSS, CBS, and GHQ-12.
The assessment of QoL in pediatric patients would allow for the earliest possible identification of their nonsomatic problems and irregularities. This could, consequently, contribute to improving QoL in both children with chronic kidney disease and their families.
本研究旨在分析接受血液透析（HD）治疗的儿童慢性肾脏病患者选定的心理社会方面情况。
该研究纳入了25名年龄在2至18岁接受HD治疗的儿童及其父母。收集了有关疾病和社会人口统计学参数的数据。我们使用儿童生活质量量表（PedsQL）评估患者，使用PedsQL代理版、一般健康问卷（GHQ - 12）、柏林社会支持量表（BSSS）以及照顾者负担量表（CBS）评估HD儿童及其主要照顾者的健康相关生活质量（QoL）。
在PedsQL测试中，HD儿童的生活质量低于健康儿童。接受HD治疗的儿童在PedsQL问卷上对其生活质量的评估高于主要照顾者，在所有子量表以及整体健康相关生活质量方面均是如此。56%的母亲在GHQ - 12测试中的得分低于2分，这可能表明心理症状有所加重。BSSS、CBS与GHQ - 12之间无相关性。
对儿科患者生活质量的评估能够尽早识别他们的非躯体问题和异常情况。因此，这有助于改善慢性肾脏病患儿及其家庭的生活质量。
