Manson Jane, Warnock Clare, Crowther Lesley
Weston Park Hospital, Whitham Road, Sheffield, S10 2SJ, UK.
Support Care Cancer. 2017 Jun;25(6):1829-1836. doi: 10.1007/s00520-017-3577-z. Epub 2017 Jan 23.
The purpose of this study is to explore experiences in the days and weeks following discharge home following diagnosis and treatment for metastatic spinal cord compression (MSCC).
Eleven participants took part in audio-recorded semi-structured interviews about their experiences at 1 and 3-4 weeks post-discharge home following a diagnosis of MSCC. Transcripts were analysed using a framework approach.
Time emerged as an overarching theme within the framework of four time points: past, present, near future and distant future. Themes included getting home, challenges at home, community support, getting back to normal, in limbo, long-term goals and coping strategies.
Getting to a level of coping at home after discharge following MSCC can take time. Services need to address this so that patients can live well within the limitations they face.
本研究旨在探讨转移性脊髓压迫症（MSCC）诊断和治疗后出院回家数天及数周内的经历。
11名参与者参加了关于MSCC诊断后出院回家1周及3 - 4周时经历的录音半结构化访谈。使用框架方法对访谈记录进行分析。
在过去、现在、近期和远期四个时间点的框架内，时间成为一个首要主题。主题包括回家、家中的挑战、社区支持、恢复正常、处于不确定状态、长期目标和应对策略。
MSCC出院后在家中达到应对自如的状态可能需要时间。服务机构需要解决这一问题，以便患者能够在面临的限制条件下生活得更好。
