炎症性肠病患儿夏令营中自信心、接纳度和友谊的提升。
Enhancements in Confidence, Acceptance, and Friendship at a Summer Camp for Children With Inflammatory Bowel Disease.
作者信息
McCombie Andrew, Gearry Richard B, Lopez Robert N, Lönnfors Sanna, Day Andrew S
机构信息
*University of Otago, Christchurch, New Zealand †European Federation of Crohn's and Ulcerative Colitis Associations, Brussels, Belgium.
出版信息
J Pediatr Gastroenterol Nutr. 2017 Sep;65(3):311-313. doi: 10.1097/MPG.0000000000001526.
Inflammatory bowel disease (IBD) affects many children and adolescents in terms of their confidence, acceptance, and ability to build friendships. New Zealand held its first summer camp for children with IBD in January 2015. We obtained feedback from the campers (ages 10-18 years) in terms of their confidence, acceptance, and quality of life. We also asked what experience was most beneficial to them, whether they made new friends with IBD, and if they would attend the camp again. Thirty-six campers responded (81.8% response rate; median age 14 years [range 10-18]; 83.3% Crohn disease; 41.7% girls). Most reported that the camp improved their confidence (86.1%), acceptance (83.3%), and overall quality of life (75.0%) relating to IBD. Moreover, most reported that meeting their fellow campers was the most beneficial experience to come from the camp (72.2%). Overall, these results emphasize the importance and relevance of such an undertaking.
炎症性肠病（IBD）在自信心、自我认同以及建立友谊的能力方面影响着许多儿童和青少年。2015年1月，新西兰举办了首届针对IBD患儿的夏令营。我们从营员（年龄在10至18岁之间）那里收集了关于他们的自信心、自我认同和生活质量的反馈。我们还询问了对他们最有益的经历是什么，他们是否与其他患有IBD的营员结交了新朋友，以及他们是否会再次参加该夏令营。36名营员做出了回应（回应率为81.8%；年龄中位数为14岁[范围为10至18岁]；83.3%为克罗恩病；41.7%为女孩）。大多数人报告称，该夏令营提高了他们与IBD相关的自信心（86.1%）、自我认同（83.3%）和总体生活质量（75.0%）。此外，大多数人报告称，结识其他营员是此次夏令营带来的最有益的经历（72.2%）。总体而言，这些结果强调了这样一项活动的重要性和相关性。
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