Singh Namita, Steiner Steven J, Fauth Rebecca, Moosmann Danyel, Arnold Janis, Elkadri Abdul, Marinoni Daniel, Molloy Laurel, Johnson Rescola Becky, Tung Jeanne, Utterson Elizabeth C
Co-Director of Pediatric IBD Center, Assistant Professor of Pediatrics, University of Washington-School of Medicine, Seattle, USA.
Professor of Pediatrics, Riley Hospital for Children, Indiana University School of Medicine, Indianapolis, USA.
Crohns Colitis 360. 2023 Aug 24;5(3):otad042. doi: 10.1093/crocol/otad042. eCollection 2023 Jul.
Camp Oasis is an annual week-long camp serving children with inflammatory bowel disease (IBD) and hosted by the Crohn's and Colitis Foundation. Youth with IBD are at increased risk for mental health challenges, with Camp Oasis potentially mitigating these risks. The aim of this study is to measure change in and predictors of social-emotional well-being and protective factors of self-worth as a result of attending Camp Oasis.
Between 2012 and 2019, a voluntary survey was administered to participants and their caregivers to reflect on their perceptions of social/emotional well-being and protective factors related to chronic disease. -tests compared change in participants' and caregivers' perceptions before and after camp; path analyses examined the key predictors of social-emotional well-being.
A total of 6011 online surveys were analyzed. Participants and caregivers reported consistently positive perceptions of participants' experiences during and after camp. Significant improvements in confidence, independence, activity, comfort around others, being more open about disease, and taking medication as expected were observed. Being new to Camp Oasis was one of the strongest predictors of both disease-related self-efficacy and social connections after camp.
The uniformly high rates of participants' perceptions during camp suggest camp is a life-changing experience for youth with IBD, reduces disease-related stigma, and enhances confidence and social skills. Participants' positive experiences appear to foster notable benefits after camp in terms of openness, their sense of belonging, connections, and confidence.
绿洲营地是一个为期一周的年度营地,为患有炎症性肠病(IBD)的儿童提供服务,由克罗恩病和结肠炎基金会主办。患有IBD的青少年面临心理健康挑战的风险增加,而绿洲营地可能会降低这些风险。本研究的目的是衡量参加绿洲营地后社会情感幸福感的变化及其预测因素,以及自我价值的保护因素。
在2012年至2019年期间,对参与者及其照顾者进行了一项自愿调查,以反映他们对与慢性病相关的社会/情感幸福感和保护因素的看法。t检验比较了营地前后参与者和照顾者看法的变化;路径分析考察了社会情感幸福感的关键预测因素。
共分析了6011份在线调查问卷。参与者和照顾者对参与者在营地期间及之后的经历一致给予积极评价。观察到在自信心、独立性、活动能力、与他人相处的舒适度、对疾病更加开放以及按预期服药方面有显著改善。初次参加绿洲营地是营地后与疾病相关的自我效能感和社会联系的最强预测因素之一。
营地期间参与者的评价普遍很高,这表明营地对患有IBD的青少年来说是一次改变人生的经历,减少了与疾病相关的耻辱感,并增强了自信心和社交技能。参与者的积极体验似乎在营地结束后在开放性、归属感、人际关系和自信心方面带来了显著益处。