Azer Samy A, Alghofaili Maha M, Alsultan Rana M, Alrumaih Najla S
Curriculum Development and Research Unit, College of Medicine, King Saud University, Riyadh, Saudi Arabia.
Curriculum Development and Research Unit, Medical Education Department, College of Medicine, King Saud University, PO Box 2925, Riyadh, 11461, Saudi Arabia.
J Cancer Educ. 2018 Aug;33(4):926-944. doi: 10.1007/s13187-017-1181-z.
The aim of this study was to assess the scientific accuracy and the readability level of websites on kidney and bladder cancers. The search engines Google™, Yahoo™ and Bing™ were searched independently by assessors in November 2014 using the following keywords: "bladder cancer", "kidney cancer", "patient bladder cancer", "patient kidney cancer" and "bladder and kidney cancer". Only English-language websites were selected on the bases of predetermined inclusion and exclusion criteria. Assessors independently reviewed the findings and evaluated the accuracy and quality of each website by using the DISCERN and the LIDA instruments. The readability of the websites was calculated using the Flesch-Kincaid Grade Level Index and the Coleman-Liau Readability Index. Sixty-two websites were finally included in the study. The overall accuracy scores varied; for the DISCERN, the range was 28 to 76; out of 80 (mean ± SD, 47.1 ± 12.1; median = 46.0, interquartile range (IQR) = 19.2), and for the LIDA, the range was 52 to 125; out of 144 (mean ± SD, 101.9 ± 15.2; median, 103; IQR, 16.5). The creators of these websites were universities and research centres (n = 25, 40%), foundations and associations (n = 10, 16%), commercial and pharmaceutical companies (n = 13, 21%), charities and volunteer work (n = 4, 6%) and non-university educational bodies (n = 10, 16%). The readability scores (mean ± SD) were 11.2 ± 2.2 for the Flesch-Kincaid Grade Level Index and 11.2 ± 1.6 for the Coleman-Liau Readability Index. The accuracy and the quality of the websites on kidney and bladder cancers varied. In most websites, there were deficiencies in clarity of aims, presenting symptoms, investigations and treatment options. The readability matched grades 10-11 literacy levels-a level above the public readability level. The study highlights the needs for further improvement of the online information created for public and patients with kidney and bladder cancers.
本研究的目的是评估有关肾癌和膀胱癌的网站的科学准确性及易读性水平。评估人员于2014年11月分别使用以下关键词独立搜索了谷歌™、雅虎™和必应™搜索引擎:“膀胱癌”、“肾癌”、“膀胱癌患者”、“肾癌患者”以及“膀胱癌和肾癌”。仅根据预先设定的纳入和排除标准选择英文网站。评估人员独立审查搜索结果,并使用DISCERN和LIDA工具评估每个网站的准确性和质量。使用弗莱什-金凯德年级水平指数和科尔曼-廖易读性指数计算网站的易读性。最终有62个网站纳入本研究。总体准确性得分各不相同;对于DISCERN工具,范围为28至76(满分80分,均值±标准差为47.1±12.1;中位数=46.0,四分位间距(IQR)=19.2),对于LIDA工具,范围为52至125(满分144分,均值±标准差为101.9±15.2;中位数为103;IQR为16.5)。这些网站的创建者包括大学和研究中心(n = 25,40%)、基金会和协会(n = 10,16%)、商业及制药公司(n = 13,21%)、慈善机构和志愿工作组织(n = 4,6%)以及非大学教育机构(n = 10,16%)。弗莱什-金凯德年级水平指数的易读性得分(均值±标准差)为11.2±2.2,科尔曼-廖易读性指数的得分为11.2±1.6。有关肾癌和膀胱癌的网站的准确性和质量各不相同。在大多数网站中,目标清晰度、症状呈现、检查及治疗选择方面存在不足。易读性与10 - 11年级的识字水平相当——高于公众易读水平。该研究强调了进一步改进为公众及肾癌和膀胱癌患者提供的在线信息的必要性。