a Division of Psychiatry , University College London , London , UK.
b School of Dementia Studies, Faculty of Health Studies , University of Bradford , Bradford , UK.
Aging Ment Health. 2018 Apr;22(4):468-473. doi: 10.1080/13607863.2016.1257563. Epub 2017 Mar 14.
Receiving a timely and accurate diagnosis and gaining access to age-appropriate support for younger people living with dementia (YPD) remains a challenge both in the UK and internationally because the focus of most dementia services is primarily upon the needs of older people. The political case to improve services for YPD depends upon the establishment of an understanding of the clinical symptoms, an unequivocal evidence base about need and an accurate evaluation of the size of the population affected. This short report assesses the evidence base from international studies regarding service design and delivery. The goal is to raise awareness, advance best practice and galvanise the international community to address the serious underfunding and underprovision of care for this marginalised group.
The current evidence suggests that there are universal problems, regardless of continent, with delays to diagnosis and poor understanding of optimum models for service provision and long-term care.
在英国和国际上，为年轻的痴呆症患者（YPD）提供及时、准确的诊断和获得适合年龄的支持仍然是一个挑战，因为大多数痴呆症服务的重点主要是满足老年人的需求。改善 YPD 服务的政治案例取决于对临床症状的理解、对需求的明确证据基础以及对受影响人群规模的准确评估。这份简短的报告评估了国际研究中关于服务设计和提供的证据基础。其目的是提高认识，推进最佳实践，并激励国际社会解决这个边缘化群体的严重资金不足和服务提供不足的问题。
目前的证据表明，无论在哪个大陆，都存在普遍的问题，包括诊断延迟和对服务提供和长期护理最佳模式的理解不佳。
