Institute of Health and Wellbeing, University of Glasgow, UK.
Psychological Therapies for Older People Service, NHS Lanarkshire, UK.
Dementia (London). 2024 Jan;23(1):23-40. doi: 10.1177/14713012231207946. Epub 2023 Oct 27.
Family caregivers are fundamental in supporting people living with dementia to remain at home, however, psychological distress can occur as a result of their caring role. Research into interventions for caregivers of people living with young-onset dementia, including their experience of and the mediating processes of such interventions, remains limited.
An Interpretative Phenomenological Analysis explored caregiver experiences and influence on caregiving of participating in a "Responding to Distress in Dementia" group. Five family caregivers were interviewed with discussions covering the period from first noticing symptoms to the interview session.
Within the group experience, four superordinate themes were identified: , 'l, ' and '. During the post-group period, three superordinate themes were recognised: , , and
The study highlighted several interrelated themes involving creating connections amongst caregivers with similar experiences, social learning, and supportive learning through group structure and facilitation. Many of the processes reflected those found in existing dementia caregiver intervention research. Recommendations included facilitating peer support groups and exploring whole-family approaches.
家庭护理人员在支持痴呆症患者居家生活方面发挥着重要作用，但他们的护理角色可能会导致心理困扰。针对早发性痴呆症患者的家庭护理人员的干预措施的研究，包括他们对这些干预措施的体验和干预措施的中介过程，仍然有限。
采用解释现象学分析方法，探讨了参加“应对痴呆症困扰”小组的家庭护理人员的体验及其对护理的影响。对 5 名家庭护理人员进行了访谈，讨论内容涵盖了从首次注意到症状到访谈会议的时间段。
在小组体验中，确定了四个上位主题：、“”和“”。在小组活动结束后，确定了三个上位主题：、和。
该研究强调了几个相互关联的主题，涉及到与具有相似经历的护理人员建立联系、社会学习以及通过小组结构和促进获得支持性学习。许多过程反映了现有的痴呆症护理人员干预研究中发现的过程。建议包括促进同伴支持小组和探索全家庭方法。
