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基于患者和专家评估的针对老年慢性阻塞性肺疾病患者的优化患者信息材料的特征

Characteristics of an optimized patient information material for elderly patients with obstructive pulmonary diseases based on patients' and experts' assessment.

作者信息

Tomisa Gábor, Horváth Alpár, Dombai Brigitta, Tamási Lilla

机构信息

Semmelweis University Department of Pulmonology, Diós árok 1/C, 1125 Budapest, Hungary.

Chiesi Hungary Ltd., Dunavirág u. 2, 1138 Budapest, Hungary.

出版信息

Multidiscip Respir Med. 2017 Mar 14;12:6. doi: 10.1186/s40248-017-0087-2. eCollection 2017.

Abstract

BACKGROUND

Life-long regular use of drugs is necessary in chronic diseases like asthma and COPD. There are several methods to improve adherence including patient information and education; however, their effectiveness on the basis of practical experience is often lower than originally planned and expected. Our objective is to develop a patient information material based on the recommendations of patients and their treating healthcare professionals to fulfill their needs.

METHODS

A survey was conducted among pulmonologists ( = 262), asthma nurses ( = 102), general practitioners ( = 321) and patients with obstructive pulmonary disease ( = 978) using on line questionnaires.

RESULTS

All surveyed population would prefer to use 1 to 5 pages long, A5 format patient information material based on topics considered important by patients that is appropriately segmented with pictures as well as supplementary information cards adapted to the life situation of patients and the severity of their disease. Questioned population (whose mean age was 57.2) preferred highly informative printed material.

CONCLUSIONS

For more effective information and improvement of adherence we recommend newly structured patient information sheets and information cards with content discussed with the targeted patients and their healthcare professionals. Customized, patient-centered information materials could improve the efficiency of patient education and make the follow-up of the various therapeutic plans easier for patients.

摘要

背景

对于哮喘和慢性阻塞性肺疾病(COPD)等慢性疾病,终身规律用药是必要的。有多种方法可提高用药依从性,包括患者信息与教育;然而,根据实际经验,它们的效果往往低于最初计划和预期。我们的目标是根据患者及其治疗医护人员的建议,开发一种满足他们需求的患者信息材料。

方法

通过在线问卷对肺病专家(n = 262)、哮喘护士(n = 102)、全科医生(n = 321)和慢性阻塞性肺疾病患者(n = 978)进行了一项调查。

结果

所有被调查人群都更倾向于使用1至5页长、A5格式的患者信息材料,该材料基于患者认为重要的主题,配有图片并适当分段,还有根据患者生活状况和疾病严重程度调整的补充信息卡。被调查人群(平均年龄57.2岁)更喜欢信息丰富的印刷材料。

结论

为了更有效地提供信息并提高依从性,我们建议采用新结构的患者信息单页和信息卡,其内容与目标患者及其医护人员进行过讨论。定制的、以患者为中心的信息材料可以提高患者教育的效率,并使患者更容易跟进各种治疗计划。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/3f8b/5351173/84c1009c9e43/40248_2017_87_Fig1_HTML.jpg

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