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身份变更与知情同意。

Identity change and informed consent.

作者信息

Witt Karsten

出版信息

J Med Ethics. 2017 Jun;43(6):384-390. doi: 10.1136/medethics-2016-103684. Epub 2017 Mar 20.

DOI:10.1136/medethics-2016-103684
PMID:28320773
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5520011/
Abstract

In this paper, I focus on a kind of medical intervention that is at the same time fascinating and disturbing: identity-changing interventions. My guiding question is how such interventions can be ethically justified within the bounds of contemporary bioethical mainstream that places great weight on the patient's informed consent. The answer that is standardly given today is that patients should be informed about the identity effects, thus suggesting that changes in identity can be treated like 'normal' side effects. In the paper, I argue that this approach is seriously lacking because it misses important complexities going along with decisions involving identity changes and consequently runs into mistakes. As a remedy I propose a new approach, the 'perspective-sensitive account', which avoids these mistakes and thus provides the conceptual resources to systematically reflect on and give a valid consent to identity-changing interventions.

摘要

在本文中,我关注的是一种既引人入胜又令人不安的医学干预措施:身份改变干预。我的指导性问题是,在当代生物伦理主流观念极为重视患者知情同意的框架内,此类干预措施如何能在伦理上得到正当辩护。如今通常给出的答案是,应告知患者身份影响,这意味着身份改变可被视作“正常”副作用来对待。在本文中,我认为这种方法严重不足,因为它忽略了涉及身份改变的决策所伴随的重要复杂性,因而会陷入错误。作为一种补救措施,我提出一种新方法,即“视角敏感解释”,它能避免这些错误,从而提供概念资源,以便系统地思考身份改变干预并给予有效同意。

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本文引用的文献

1
Subjectively perceived personality and mood changes associated with subthalamic stimulation in patients with Parkinson's disease.帕金森病患者与丘脑底核刺激相关的主观感知人格和情绪变化。
Psychol Med. 2015 Jan;45(1):73-85. doi: 10.1017/S0033291714001081. Epub 2014 May 12.
2
"I Am Who I Am": On the Perceived Threats to Personal Identity from Deep Brain Stimulation.“我就是我”:论深部脑刺激对个人身份认同的感知威胁
Neuroethics. 2013;6(3):513-526. doi: 10.1007/s12152-011-9137-1. Epub 2011 Sep 14.
3
Me, Myself and My Brain Implant: Deep Brain Stimulation Raises Questions of Personal Authenticity and Alienation.我、我自己与我的脑植入物:深度脑刺激引发了关于个人真实性与疏离感的问题。
Neuroethics. 2013;6(3):483-497. doi: 10.1007/s12152-011-9115-7. Epub 2011 May 12.
4
Authenticity and autonomy in deep-brain stimulation.深部脑刺激中的真实性与自主性
J Med Ethics. 2014 Aug;40(8):563-6. doi: 10.1136/medethics-2013-101419. Epub 2013 May 22.
5
Authenticity or autonomy? When deep brain stimulation causes a dilemma.真实性还是自主性?当深部脑刺激引发两难困境时。
J Med Ethics. 2013 Dec;39(12):757-60. doi: 10.1136/medethics-2011-100427. Epub 2013 Jan 26.
6
Brain, mind and machine: what are the implications of deep brain stimulation for perceptions of personal identity, agency and free will?脑、心智和机器:深度脑刺激对个人身份认同、自主性和自由意志的看法有何影响?
Bioethics. 2013 Nov;27(9):465-70. doi: 10.1111/j.1467-8519.2012.01978.x. Epub 2012 Jun 10.
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Organ transplantation and personal identity: how does loss and change of organs affect the self?器官移植与个人身份:器官的丧失与改变如何影响自我?
J Med Philos. 2012 Apr;37(2):139-58. doi: 10.1093/jmp/jhs011. Epub 2012 Apr 2.
8
The burden of normality: from 'chronically ill' to 'symptom free'. New ethical challenges for deep brain stimulation postoperative treatment.常态的负担:从“慢性疾病”到“无症状”。深部脑刺激术后治疗的新伦理挑战。
J Med Ethics. 2012 Jul;38(7):408-12. doi: 10.1136/medethics-2011-100044. Epub 2012 Mar 19.
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Deep brain stimulation, personal identity and policy.脑深部电刺激、个人身份认同与政策。
Int Rev Psychiatry. 2011 Oct;23(5):486-92. doi: 10.3109/09540261.2011.632624.
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Brain-computer interfaces: military, neurosurgical, and ethical perspective.脑机接口:军事、神经外科和伦理视角。
Neurosurg Focus. 2010 May;28(5):E25. doi: 10.3171/2010.2.FOCUS1027.