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“我就是与众不同”:成年后被诊断出患有自闭症谱系障碍的女性在性别和社会关系方面的经历。

'I was just so different': The experiences of women diagnosed with an autism spectrum disorder in adulthood in relation to gender and social relationships.

机构信息

1 University of Essex, UK.

2 Great Ormond Street Hospital for Children NHS Foundation Trust, UK.

出版信息

Autism. 2017 Aug;21(6):661-669. doi: 10.1177/1362361316687987. Epub 2017 Mar 22.

Abstract

Existing literature exploring autism spectrum disorders within female populations predominantly utilises quantitative methodology. A limited number of small-scale, qualitative studies have explored the experiences of adolescent girls with autism spectrum disorder, but adult women have remained largely unheard. This study aims to broaden the stories told within autobiographical literature and empower those within the wider community of women with autism spectrum disorder. In doing so, it seeks to extend existing conceptualisations of experience to include socially and culturally located factors. A qualitative methodology was adopted, utilising multi-stage narrative analysis. Seven semi-structured interviews with women who received a diagnosis in adulthood were conducted. Recruitment spanned community mental health services, an inpatient service and a community support group. From the women's diverse experiences and stories emerged two broad categories related to gender identity and social relationships. The findings are discussed in relation to existing constructs of autism in women.

摘要

现有文献主要采用定量方法探索女性群体中的自闭症谱系障碍。少数小规模的定性研究探讨了自闭症谱系障碍青少年女孩的经历,但成年女性的声音在很大程度上仍未被听到。本研究旨在拓宽自传文学中的故事,并赋予自闭症谱系障碍女性更广泛社区的力量。为此,它试图将现有的经验概念化扩展到包括社会和文化定位因素。本研究采用了定性方法,利用多阶段叙事分析。对 7 名成年后被诊断为自闭症的女性进行了半结构化访谈。招募范围涵盖社区心理健康服务、住院服务和社区支持小组。从女性多样化的经历和故事中,出现了与性别认同和社会关系相关的两个广泛类别。研究结果与女性自闭症的现有结构进行了讨论。

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