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自闭症谱系障碍女性确诊较晚的经历:对女性自闭症表型的调查。

The Experiences of Late-diagnosed Women with Autism Spectrum Conditions: An Investigation of the Female Autism Phenotype.

作者信息

Bargiela Sarah, Steward Robyn, Mandy William

机构信息

Research Department of Clinical, Educational and Health Psychology, UCL, Gower Street, London, WC1E 6BT, UK.

Centre for Research in Autism and Education, UCL Institute of Child Health, 55-59 Gordon Square, London, WC1H 0NU, UK.

出版信息

J Autism Dev Disord. 2016 Oct;46(10):3281-94. doi: 10.1007/s10803-016-2872-8.

DOI:10.1007/s10803-016-2872-8
PMID:27457364
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC5040731/
Abstract

We used Framework Analysis to investigate the female autism phenotype and its impact upon the under-recognition of autism spectrum conditions (ASC) in girls and women. Fourteen women with ASC (aged 22-30 years) diagnosed in late adolescence or adulthood gave in-depth accounts of: 'pretending to be normal'; of how their gender led various professionals to miss their ASC; and of conflicts between ASC and a traditional feminine identity. Experiences of sexual abuse were widespread in this sample, partially reflecting specific vulnerabilities from being a female with undiagnosed ASC. Training would improve teachers' and clinicians' recognition of ASC in females, so that timely identification can mitigate risks and promote wellbeing of girls and women on the autism spectrum.

摘要

我们采用框架分析法来研究女性自闭症表型及其对女孩和女性自闭症谱系障碍(ASC)识别不足的影响。14名在青春期后期或成年期被诊断出患有ASC的女性(年龄在22至30岁之间)深入讲述了:“假装正常”;她们的性别如何导致各类专业人员忽视其ASC;以及ASC与传统女性身份之间的冲突。在这个样本中,性虐待经历很普遍,部分反映了未被诊断出患有ASC的女性所特有的脆弱性。培训将提高教师和临床医生对女性ASC的识别能力,以便及时识别能够降低风险并促进自闭症谱系中女孩和女性的福祉。

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本文引用的文献

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Gender ratio in a clinical population sample, age of diagnosis and duration of assessment in children and adults with autism spectrum disorder.自闭症谱系障碍患儿和成人临床人群样本中的性别比例、诊断年龄和评估持续时间。
Autism. 2016 Jul;20(5):628-34. doi: 10.1177/1362361315617879. Epub 2016 Jan 29.
2
An investigation of the 'female camouflage effect' in autism using a computerized ADOS-2 and a test of sex/gender differences.一项使用计算机化的《自闭症诊断观察量表第二版》(ADOS-2)对自闭症中“女性伪装效应”及性别差异进行的研究。
Mol Autism. 2016 Jan 21;7:10. doi: 10.1186/s13229-016-0073-0. eCollection 2016.
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Annual Research Review: The role of the environment in the developmental psychopathology of autism spectrum condition.年度研究综述:环境在自闭症谱系障碍发展心理病理学中的作用。
J Child Psychol Psychiatry. 2016 Mar;57(3):271-92. doi: 10.1111/jcpp.12501. Epub 2016 Jan 19.
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Gender Differences in the Social Motivation and Friendship Experiences of Autistic and Non-autistic Adolescents.自闭症和非自闭症青少年社交动机与友谊经历中的性别差异
J Autism Dev Disord. 2016 Apr;46(4):1297-306. doi: 10.1007/s10803-015-2669-1.
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Identifying the lost generation of adults with autism spectrum conditions.识别患有自闭症谱系障碍的成年“失落一代”。
Lancet Psychiatry. 2015 Nov;2(11):1013-27. doi: 10.1016/S2215-0366(15)00277-1.
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The experiences and needs of female adults with high-functioning autism spectrum disorder.患有高功能自闭症谱系障碍的成年女性的经历与需求。
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Do women with eating disorders who have social and flexibility difficulties really have autism? A case series.患有饮食失调症且存在社交和灵活性困难的女性真的患有自闭症吗?一项病例系列研究。
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Evidence-Based Practices for Children, Youth, and Young Adults with Autism Spectrum Disorder: A Comprehensive Review.针对患有自闭症谱系障碍的儿童、青少年和青年的循证实践:一项全面综述。
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Sex/gender differences and autism: setting the scene for future research.性别差异与自闭症:为未来研究奠定基础
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Sex differences in autism spectrum disorder based on DSM-5 criteria: evidence from clinician and teacher reporting.基于《精神疾病诊断与统计手册》第五版标准的自闭症谱系障碍中的性别差异:来自临床医生和教师报告的证据。
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