“每个人都觉得我很怪异”：对抽动秽语综合征青少年心理社会经历的质性探索
'Everybody just thinks I'm weird': a qualitative exploration of the psychosocial experiences of adolescents with Tourette syndrome.
作者信息
Wadman R, Tischler V, Jackson G M
机构信息
Faculty of Medicine & Health Sciences, University of Nottingham, Nottingham, UK.
出版信息
Child Care Health Dev. 2013 Nov;39(6):880-6. doi: 10.1111/cch.12033. Epub 2013 Jan 30.
BACKGROUND
Research suggests Tourette syndrome (TS) can have a negative impact on quality of life. To date, little research has examined the perspectives of young people with this condition in depth.
METHODS
Six 14- to 16-year-olds with TS took part in semi-structured interviews to explore the perceived impact of this condition on self and on relationships with others. The transcripts were analysed using interpretative phenomenological analysis.
RESULTS
The young people felt that TS was a constant presence in their lives, but one they have learnt to cope with well. Most had developed supportive friendships but encountered problems when interacting with the wider peer network. Specific concerns around meeting new people and future employment were voiced.
CONCLUSIONS
The adolescents described specific ways in which TS affects quality of life and social interactions, and the effort it can take to cope effectively with this condition.
背景
研究表明，抽动秽语综合征（TS）会对生活质量产生负面影响。迄今为止，很少有研究深入探讨患有这种疾病的年轻人的观点。
方法
六名14至16岁的抽动秽语综合征患者参与了半结构化访谈，以探讨这种疾病对自身以及与他人关系的感知影响。使用解释现象学分析对访谈记录进行了分析。
结果
这些年轻人认为抽动秽语综合征在他们的生活中一直存在，但他们已经学会了很好地应对。大多数人都建立了支持性的友谊，但在与更广泛的同龄人网络互动时遇到了问题。他们表达了对结识新朋友和未来就业的具体担忧。
结论
青少年描述了抽动秽语综合征影响生活质量和社会互动的具体方式，以及有效应对这种疾病所需付出的努力。
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