Fernandes Nayara Freitas, Goffi-Gomez Maria Valéria Schmidt, Magalhães Ana Tereza De Matos, Tsuji Robinson Koji, De Brito Rubens Vuono, Bento Ricardo Ferreira
Faculdade de Medicina, Universidade de São Paulo, São Paulo, SP, Brasil.
Codas. 2017;29(2):e20160059. doi: 10.1590/2317-1782/20172016059. Epub 2017 Mar 27.
Purpose To evaluate satisfaction and quality of life of users of Auditory Implant Brainstem. Methods This is a cross-sectional and descriptive study conducted at Divisão de Clínica Otorrinolaringológica of Hospital das Clínicas of Faculdade de Medicina da Universidade de São Paulo, Brazil. For the research, 19 users of an Auditory Brainstem Implant answered the following questionnaires: KINDLR (Questionnaire for Measuring Health-Related Quality of Life in Children and Adolescents), for children and adolescents, their parents and/or caregivers; WHOQOL-BREF questionnaire, for adult participants; and the Satisfaction with Amplification in Daily Life (SADL) questionnaire culturally adapted to Brazilian Portuguese. Results The quality of life of children using Auditory Brainstem Implant from the perspective of their parents showed global results above average, as for most domains, except for the emotional well-being domain. Adults showed results above average for all domains. Regarding satisfaction with the device, the adult users of auditory brainstem implant were satisfied in general, except with regard to personal image. The parents of the children showed dissatisfaction in all subscales, except for the subscale of services and cost. Conclusion The results indicated that although patients are dissatisfied with the device in some aspects, overall the quality of life was rated as good for most of the aspects assessed.
目的 评估听觉脑干植入用户的满意度和生活质量。方法 这是一项在巴西圣保罗大学医学院临床医院耳鼻喉科进行的横断面描述性研究。在该研究中，19名听觉脑干植入用户回答了以下问卷：针对儿童和青少年及其父母和/或照料者的KINDLR（儿童和青少年健康相关生活质量测量问卷）；针对成年参与者的WHOQOL - BREF问卷；以及经过文化调适以适应巴西葡萄牙语的日常生活中对放大装置的满意度（SADL）问卷。结果 从父母的角度来看，使用听觉脑干植入的儿童的生活质量在大多数领域显示出高于平均水平的总体结果，但情感幸福领域除外。成年人在所有领域的结果均高于平均水平。关于对该装置的满意度，听觉脑干植入的成年用户总体上感到满意，但在个人形象方面除外。儿童的父母在所有子量表中均表示不满意，但服务和成本子量表除外。结论 结果表明，尽管患者在某些方面对该装置不满意，但总体而言，在评估的大多数方面生活质量被评为良好。
