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父母对儿童使用人工耳蜗的看法。

Parental perspectives of children using cochlear implant.

作者信息

Stefanini Marcela Roselin, Morettin Marina, Zabeu Julia Speranza, Bevilacqua Maria Cecília, Moret Adriane Lima Mortari

机构信息

Speech Language Pathologist by School of Dentistry of Bauru, Universidade de São Paulo - USP, Bauru, SP, Brazil.

Graduate Program in Public Health at School of Public Health, Universidade de São Paulo - USP, São Paulo, SP, Brazil.

出版信息

Codas. 2014 Nov-Dec;26(6):487-93. doi: 10.1590/2317-1782/20142014125. Epub 2014 Dec 1.

Abstract

PURPOSE

To evaluate the parents' perspective with regard to evolution of their child with cochlear implant (CI).

METHODS

This was a cross-sectional prospective study conducted at the Centro de Pesquisas Audiológicas of Hospital de Reabilitação de Anomalias Craniofaciais of Universidade de São Paulo. The selection of the sample was performed from the spontaneous demand, among the months from July to December 2011. The final sample comprised 50 parents or guardians of children using CI, with minimum 1 year and maximum of 3 years of device use. The translated and adapted to Brazilian Portuguese version of the questionnaire "Perspectives of parents of children with cochlear implants" was applied. This instrument consists of 74 questions and allows quantification of the parents' perspective on subscales that illustrate the situation of the child and family. Each question has five options scored from one to five responses. The Spearman test for comparison of results between the subscales was applied.

RESULTS

The social relationships, self-sufficiency, and communication subscales showed the highest mean score, whereas the worst score was for child support subscale, reflecting the independence and autonomy of the patients. The correlation between the child subscales was realized, and the results showed themselves significant and positive for communication subscale of communication with all others subscales. The family subscales also had a positive correlation with the communication, education, and self-sufficiency.

CONCLUSION

These results demonstrate that parents have good expectations regarding communication, independence, and social participation of children after CI surgery, and this questionnaire is a useful tool for use in clinical practice.

摘要

目的

评估家长对其接受人工耳蜗植入(CI)孩子成长情况的看法。

方法

这是一项在圣保罗大学颅面畸形康复医院听觉研究中心进行的横断面前瞻性研究。样本选取于2011年7月至12月期间根据自发需求进行。最终样本包括50名使用人工耳蜗的孩子的家长或监护人,孩子使用该设备的时间最短为1年,最长为3年。应用了经翻译并改编为巴西葡萄牙语版本的“人工耳蜗植入儿童家长的看法”问卷。该工具由74个问题组成,能够对家长在说明孩子和家庭状况的子量表上的看法进行量化。每个问题有五个选项,从一到五个回答进行评分。应用Spearman检验来比较子量表之间的结果。

结果

社会关系、自给自足和沟通子量表的平均得分最高,而儿童支持子量表得分最差,反映了患者的独立性和自主性。实现了儿童子量表之间的相关性,结果表明沟通子量表与所有其他子量表的沟通方面具有显著正相关。家庭子量表与沟通、教育和自给自足也呈正相关。

结论

这些结果表明,家长对人工耳蜗植入手术后孩子的沟通、独立性和社会参与有良好期望,并且该问卷是临床实践中有用的工具。

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