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胎儿酒精谱系障碍患儿生母所面临的公众污名。

The Public Stigma of Birth Mothers of Children with Fetal Alcohol Spectrum Disorders.

作者信息

Corrigan Patrick W, Lara Juana Lorena, Shah Binoy Biren, Mitchell Kathleen T, Simmes Diana, Jones Kenneth L

机构信息

Illinois Institute of Technology, Chicago, Illinois.

National Organization on Fetal Alcohol Syndrome (NOFAS), Washington, District of Columbia.

出版信息

Alcohol Clin Exp Res. 2017 Jun;41(6):1166-1173. doi: 10.1111/acer.13381. Epub 2017 Apr 24.

Abstract

BACKGROUND

Stigma affects not only the person with a stigmatizing condition such as fetal alcohol spectrum disorders (FASD), but also their family members. This study examined whether there are stigmatizing attitudes about biological mothers of children with FASD in a crowdsourced sample.

METHODS

Three hundred and eighty-nine participants were asked to rate levels of difference, disdain, and responsibility on 4 conditions: serious mental illness (MI), substance use disorder (SUD), jail experience, and FASD. A budget allocation task was administered as a proxy of discrimination. Prior experience with each of the 4 conditions was noted to assess familiarity.

RESULTS

Research participants viewed mothers of children with FASD as more different, disdained, and responsible than women with serious MI, SUD, and jail experience. Budget allocation toward FASD service programs was significantly lower than that toward all other human service programs. Familiarity with the 3 comparison conditions moderated most of the stigma ratings, but this effect was not seen in the FASD condition.

CONCLUSIONS

Results supported the notion that mothers of children with FASD are highly stigmatized for their past behavior. The data also suggested that the public might discriminate against this population. Stigma reduction interventions should focus on contact-based strategies, rather than education-based strategies.

摘要

背景

耻辱感不仅影响患有诸如胎儿酒精谱系障碍(FASD)等污名化疾病的人,也会影响他们的家庭成员。本研究在一个众包样本中调查了对于患有FASD儿童的生母是否存在污名化态度。

方法

389名参与者被要求对4种情况(严重精神疾病、物质使用障碍、入狱经历和FASD)下的差异、轻蔑和责任程度进行评分。进行了一项预算分配任务作为歧视的替代指标。记录了对这4种情况中每种情况的既往经历以评估熟悉程度。

结果

研究参与者认为,与患有严重精神疾病、物质使用障碍和有入狱经历的女性相比,患有FASD儿童的母亲更与众不同、更受轻蔑且更应承担责任。对FASD服务项目的预算分配显著低于对所有其他人道服务项目的预算分配。对3种对照情况的熟悉程度缓和了大多数耻辱感评分,但在FASD情况中未观察到这种效应。

结论

结果支持了这样一种观点,即患有FASD儿童的母亲因其过去的行为而受到高度污名化。数据还表明公众可能会歧视这一人群。减少耻辱感的干预措施应侧重于基于接触的策略,而非基于教育的策略。

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