• 文献检索
  • 文档翻译
  • 深度研究
  • 学术资讯
  • Suppr Zotero 插件Zotero 插件
  • 邀请有礼
  • 套餐&价格
  • 历史记录
应用&插件
Suppr Zotero 插件Zotero 插件浏览器插件Mac 客户端Windows 客户端微信小程序
定价
高级版会员购买积分包购买API积分包
服务
文献检索文档翻译深度研究API 文档MCP 服务
关于我们
关于 Suppr公司介绍联系我们用户协议隐私条款
关注我们

Suppr 超能文献

核心技术专利:CN118964589B侵权必究
粤ICP备2023148730 号-1Suppr @ 2026

文献检索

告别复杂PubMed语法,用中文像聊天一样搜索,搜遍4000万医学文献。AI智能推荐,让科研检索更轻松。

立即免费搜索

文件翻译

保留排版,准确专业,支持PDF/Word/PPT等文件格式,支持 12+语言互译。

免费翻译文档

深度研究

AI帮你快速写综述,25分钟生成高质量综述,智能提取关键信息,辅助科研写作。

立即免费体验

种族和民族差异对患有胎儿酒精谱系障碍个体的心理护理:改善预防、评估/诊断和干预的残疾研究和批判种族理论视角。

Racial and ethnic disparities in psychological care for individuals with FASD: a dis/ability studies and critical race theory perspective toward improving prevention, assessment/diagnosis, and intervention.

机构信息

Mt. Hope Family Center, University of Rochester, Rochester, NY, United States.

Department of Pediatrics, University of Minnesota Twin Cities, Minneapolis, MN, United States.

出版信息

Front Public Health. 2024 Mar 13;12:1355802. doi: 10.3389/fpubh.2024.1355802. eCollection 2024.

DOI:10.3389/fpubh.2024.1355802
PMID:38544727
原文链接:https://pmc.ncbi.nlm.nih.gov/articles/PMC10965703/
Abstract

Fetal alcohol spectrum disorders (FASD) are among the most common neurodevelopmental disorders and substantially impact public health. FASD can affect people of all races and ethnicities; however, there are important racial and ethnic disparities in alcohol-exposed pregnancy prevention, assessment and diagnosis of FASD, and interventions to support individuals with FASD and their families. In this article we use the Dis/Ability Studies and Critical Race Theory (Dis/Crit) framework to structure the exploration of disparities and possible solutions within these three areas (prevention, diagnosis, intervention). Dis/Crit provides a guide to understanding the intersection of dis/ability and race, while framing both as social constructs. Following the Dis/Crit framework, the systemic, historical, and contemporary racism and ableism present in psychological care is further discussed. We aim to elucidate these racial and ethnic disparities within the fields of psychology and neuropsychology through the Dis/Crit framework and provide potential points of action to reduce these disparities.

摘要

胎儿酒精谱系障碍(FASD)是最常见的神经发育障碍之一,对公共健康有重大影响。FASD 可影响所有种族和族裔的人群;然而,在酒精暴露性妊娠预防、FASD 的评估和诊断,以及支持 FASD 个体及其家庭的干预措施方面,存在着重要的种族和族裔差异。在本文中,我们使用残疾研究和批判种族理论(Dis/Crit)框架来构建对这三个领域(预防、诊断、干预)内差异和可能解决方案的探讨。Dis/Crit 为理解残疾和种族的交叉提供了指导,同时将两者都框定为社会建构。在 Dis/Crit 框架的指导下,进一步讨论了心理保健中存在的系统、历史和当代种族主义和能力主义。我们旨在通过 Dis/Crit 框架阐明心理学和神经心理学领域内的这些种族和族裔差异,并提供减少这些差异的潜在行动要点。

https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e97/10965703/3458cd7ad1a1/fpubh-12-1355802-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e97/10965703/3458cd7ad1a1/fpubh-12-1355802-g001.jpg
https://cdn.ncbi.nlm.nih.gov/pmc/blobs/0e97/10965703/3458cd7ad1a1/fpubh-12-1355802-g001.jpg

相似文献

1
Racial and ethnic disparities in psychological care for individuals with FASD: a dis/ability studies and critical race theory perspective toward improving prevention, assessment/diagnosis, and intervention.种族和民族差异对患有胎儿酒精谱系障碍个体的心理护理:改善预防、评估/诊断和干预的残疾研究和批判种族理论视角。
Front Public Health. 2024 Mar 13;12:1355802. doi: 10.3389/fpubh.2024.1355802. eCollection 2024.
2
A South African mixed race lip/philtrum guide for diagnosis of fetal alcohol spectrum disorders.一种用于诊断胎儿酒精谱系障碍的南非混血儿唇部/人中指南。
Am J Med Genet A. 2015 Apr;167A(4):752-5. doi: 10.1002/ajmg.a.37023. Epub 2015 Feb 25.
3
Challenges of diagnosing fetal alcohol spectrum disorders in foster and adopted children.诊断寄养及领养儿童的胎儿酒精谱系障碍所面临的挑战。
Alcohol. 2018 Mar;67:37-43. doi: 10.1016/j.alcohol.2017.05.004. Epub 2017 Aug 24.
4
Challenges in Accurately Assessing Prenatal Alcohol Exposure in a Study of Fetal Alcohol Spectrum Disorder in a Youth Detention Center.在青年拘留中心的胎儿酒精谱系障碍研究中,准确评估产前酒精暴露所面临的挑战。
Alcohol Clin Exp Res. 2019 Feb;43(2):309-316. doi: 10.1111/acer.13926. Epub 2018 Dec 24.
5
Sex-related differences among individuals assessed for fetal alcohol spectrum disorder in Canada.加拿大胎儿酒精谱系障碍评估个体中的性别差异。
Alcohol Clin Exp Res (Hoboken). 2023 Mar;47(3):613-623. doi: 10.1111/acer.15017. Epub 2023 Mar 18.
6
The past, present, and future of fetal alcohol spectrum disorder work in Newfoundland and Labrador: A landscape paper for change.新斯科舍省胎儿酒精谱系障碍工作的过去、现在和未来:变革的景观论文。
Birth Defects Res. 2018 Oct 2;110(16):1215-1222. doi: 10.1002/bdr2.1378. Epub 2018 Sep 10.
7
Population-based prevalence of fetal alcohol spectrum disorder in Canada.基于人群的加拿大胎儿酒精谱系障碍流行率。
BMC Public Health. 2019 Jun 28;19(1):845. doi: 10.1186/s12889-019-7213-3.
8
Ethical Challenges in Contemporary FASD Research and Practice.当代胎儿酒精谱系障碍研究与实践中的伦理挑战
Camb Q Healthc Ethics. 2016 Oct;25(4):726-32. doi: 10.1017/S096318011600044X.
9
Fetal Alcohol Spectrum Disorders: Characteristics, Complications, and Treatment.胎儿酒精谱系障碍:特征、并发症及治疗
Community Ment Health J. 2017 Aug;53(6):711-718. doi: 10.1007/s10597-017-0104-0. Epub 2017 Feb 6.
10
To what extent is Fetal Alcohol Spectrum Disorder considered in policy-related documents in South Africa? A document review.在南非,与政策相关的文件在多大程度上考虑了胎儿酒精谱系障碍?一项文件回顾。
Health Res Policy Syst. 2019 Apr 29;17(1):46. doi: 10.1186/s12961-019-0447-9.

引用本文的文献

1
How do the neurocognitive profiles of FASD and complex trauma compare in the pediatric population?: A scoping review protocol.在儿科人群中,胎儿酒精谱系障碍(FASD)和复杂性创伤的神经认知特征如何比较?:一项范围综述方案。
PLoS One. 2025 Aug 5;20(8):e0328845. doi: 10.1371/journal.pone.0328845. eCollection 2025.
2
Prevalence of congenital heart defects among children with and without diagnosed fetal alcohol spectrum disorders, 2016-2022.2016 - 2022年诊断为胎儿酒精谱系障碍和未诊断为胎儿酒精谱系障碍儿童的先天性心脏缺陷患病率
Drug Alcohol Depend. 2025 Sep 1;274:112790. doi: 10.1016/j.drugalcdep.2025.112790. Epub 2025 Jul 12.

本文引用的文献

1
Proceedings of the 2022 annual meeting of the Fetal Alcohol Spectrum Disorders study group.2022 年胎儿酒精谱系障碍研究组年会论文集。
Alcohol. 2023 Dec;113:11-20. doi: 10.1016/j.alcohol.2023.08.002. Epub 2023 Aug 10.
2
Disability doesn't discriminate: health inequities at the intersection of race and disability.残疾不会歧视:种族与残疾交叉领域的健康不平等。
Front Rehabil Sci. 2023 Jul 6;4:1075775. doi: 10.3389/fresc.2023.1075775. eCollection 2023.
3
Modern Assessments of Intelligence Must Be Fair and Equitable.现代智力评估必须公平公正。
J Intell. 2023 Jun 20;11(6):126. doi: 10.3390/jintelligence11060126.
4
Racial/Ethnic Disparity in Association Between Fetal Alcohol Syndrome and Alcohol Intake During Pregnancy: Multisite Retrospective Cohort Study.种族/民族差异与妊娠期间胎儿酒精综合征和酒精摄入的关联:多地点回顾性队列研究。
JMIR Public Health Surveill. 2023 Apr 21;9:e45358. doi: 10.2196/45358.
5
Fetal alcohol spectrum disorders.胎儿酒精谱系障碍
Nat Rev Dis Primers. 2023 Feb 23;9(1):11. doi: 10.1038/s41572-023-00420-x.
6
Racial and Ethnic Disparities in Geographic Access to Autism Resources Across the US.美国各地自闭症资源获取的地理分布存在种族和民族差异。
JAMA Netw Open. 2023 Jan 3;6(1):e2251182. doi: 10.1001/jamanetworkopen.2022.51182.
7
Comparison of three systems for the diagnosis of fetal alcohol spectrum disorders in a community sample.比较三种系统在社区样本中诊断胎儿酒精谱系障碍的效果。
Alcohol Clin Exp Res (Hoboken). 2023 Feb;47(2):370-381. doi: 10.1111/acer.14999. Epub 2023 Jan 12.
8
Inequities in quality perinatal care in the United States during pregnancy and birth after cesarean.美国剖宫产术后妊娠和分娩期间围产期护理质量的不平等现象。
PLoS One. 2022 Sep 22;17(9):e0274790. doi: 10.1371/journal.pone.0274790. eCollection 2022.
9
Black Children With Developmental Disabilities Receive Less Augmentative and Alternative Communication Intervention Than Their White Peers: Preliminary Evidence of Racial Disparities From a Secondary Data Analysis.发展障碍的黑人儿童接受的辅助沟通干预比其白人同龄人少:二次数据分析初步显示存在种族差异。
Am J Speech Lang Pathol. 2022 Sep 7;31(5):2159-2174. doi: 10.1044/2022_AJSLP-22-00079. Epub 2022 Aug 31.
10
Improving diversity in study participation: Patient perspectives on barriers, racial differences and the role of communities.提高研究参与多样性:患者对障碍、种族差异和社区作用的看法。
Health Expect. 2022 Aug;25(4):1979-1987. doi: 10.1111/hex.13554. Epub 2022 Jun 28.