Read Kevin B, LaPolla Fred Willie Zametkin, Tolea Magdalena I, Galvin James E, Surkis Alisa
J Med Libr Assoc. 2017 Apr;105(2):160-166. doi: 10.5195/jmla.2017.221.
A clinical study team performing three multicultural dementia screening studies identified the need to improve data management practices and facilitate data sharing. A collaboration was initiated with librarians as part of the National Library of Medicine (NLM) informationist supplement program. The librarians identified areas for improvement in the studies' data collection, entry, and processing workflows.
The librarians' role in this project was to meet needs expressed by the study team around improving data collection and processing workflows to increase study efficiency and ensure data quality. The librarians addressed the data collection, entry, and processing weaknesses through standardizing and renaming variables, creating an electronic data capture system using REDCap, and developing well-documented, reproducible data processing workflows.
NLM informationist supplements provide librarians with valuable experience in collaborating with study teams to address their data needs. For this project, the librarians gained skills in project management, REDCap, and understanding of the challenges and specifics of a clinical research study. However, the time and effort required to provide targeted and intensive support for one study team was not scalable to the library's broader user community.
一个进行三项多文化痴呆筛查研究的临床研究团队发现有必要改进数据管理实践并促进数据共享。作为美国国立医学图书馆（NLM）信息专家补充计划的一部分，与图书馆员开展了合作。图书馆员确定了研究数据收集、录入和处理工作流程中需要改进的领域。
图书馆员在该项目中的作用是满足研究团队提出的围绕改进数据收集和处理工作流程以提高研究效率并确保数据质量的需求。图书馆员通过标准化和重新命名变量、使用REDCap创建电子数据捕获系统以及开发文档完善、可重复的数据处理工作流程来解决数据收集、录入和处理方面的弱点。
NLM信息专家补充计划为图书馆员提供了与研究团队合作以满足其数据需求的宝贵经验。对于该项目，图书馆员获得了项目管理、REDCap方面的技能以及对临床研究的挑战和细节的理解。然而，为一个研究团队提供有针对性的密集支持所需的时间和精力无法扩展到图书馆更广泛的用户群体。
