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“不这么做简直就像犯罪”:感染艾滋病毒的年轻人与对抗逆转录病毒疗法不完全依从的污名化

"Not Taking it Will Just be Like a Sin": Young People Living with HIV and the Stigmatization of Less-Than-Perfect Adherence to Antiretroviral Therapy.

作者信息

Bernays Sarah, Paparini Sara, Seeley Janet, Rhodes Tim

机构信息

a School of Public Health , University of Sydney , Sydney , Australia.

b London School of Hygiene and Tropical Medicine , London , United Kingdom.

出版信息

Med Anthropol. 2017 Jul;36(5):485-499. doi: 10.1080/01459740.2017.1306856. Epub 2017 Apr 5.

Abstract

Global health priorities are being set to address questions on adherence to HIV antiretroviral therapy in adolescence. Few studies have explored young people's perspectives on the complex host of social and relational challenges they face in dealing with their treatment in secret and their condition in silence. In redressing this, we present findings from a longitudinal qualitative study with young people living with HIV in the UK, Ireland, US, and Uganda, embedded within the BREATHER international clinical trial. Drawing from Goffman's notion of stigma, we analyze relational dynamics in HIV clinics, as rare spaces where HIV is "known," and how young people's relationships may be threatened by non-adherence to treatment. Young people's reflections on and strategies for maintaining their reputation as patients raise questions about particular forms of medicalization of HIV and the moralization of treatment adherence that affect them, and how these may restrict opportunities for care across the epidemic.

摘要

全球卫生重点工作正在围绕解决青少年坚持接受艾滋病毒抗逆转录病毒治疗的问题展开。很少有研究探讨年轻人对他们在秘密接受治疗和默默应对病情时所面临的一系列复杂社会和人际关系挑战的看法。为了解决这一问题,我们展示了一项纵向定性研究的结果,该研究针对英国、爱尔兰、美国和乌干达的艾滋病毒感染者青年,该研究嵌入在BREATHER国际临床试验中。借鉴戈夫曼的污名概念,我们分析了艾滋病毒诊所中的人际关系动态,这是艾滋病毒被“知晓”的罕见场所,以及年轻人的关系如何因不坚持治疗而受到威胁。年轻人对维护其患者声誉的反思和策略,引发了关于艾滋病毒特定形式的医学化以及影响他们的治疗依从性道德化的问题,以及这些可能如何限制整个疫情期间的护理机会。

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