Zabetian Saba, Jacobson Gordon, Lim Henry W, Eide Melody J, Huggins Richard H
J Drugs Dermatol. 2017 Apr 1;16(4):344-350.
BACKGROUND: No study has examined the impact of vitiligo support group membership on vitiligo patient quality of life (QoL).
OBJECTIVE: We sought to examine the QoL impact of vitiligo support groups by comparing QoL and associated patient characteristics between vitiligo patients who are and are not members of a vitiligo support group.
METHODS: Members of a Henry Ford Hospital-sponsored, Southeast Michigan Vitiligo Support Group were compared to non-member vitiligo patients recruited from a previous study cohort.17 Eligible patients were asked to complete the Dermatology Life Quality Index (DLQI) and a study-specific questionnaire designed to collect relevant patient characteristics.
RESULTS: The mean DLQI scores for the support group members and non-members were similar (7.1 ± 5.4 and 6.0 ± 6.5, respectively; P-value 0.2), despite the support group members reporting more severe overall disease and increased disease severity in exposed portions of the body. The African-American: Caucasian ratio and the prevalence of unemployment were both significantly higher among the support group participants.
Small sample size may have limited the study's ability to demonstrate the differences between the support group participants and the controls.
CONCLUSIONS: The similar QoL despite an increased prevalence of poorer QoL indicators among the support group participants suggests a protective effect of support group membership.
J Drugs Dermatol. 2017;16(4):344-350.
.尚无研究探讨白癜风支持小组成员身份对白癜风患者生活质量（QoL）的影响。
我们试图通过比较白癜风支持小组成员和非成员的生活质量及相关患者特征，来研究白癜风支持小组对生活质量的影响。
将亨利·福特医院赞助的密歇根东南部白癜风支持小组的成员与从先前研究队列中招募的非成员白癜风患者进行比较。17名符合条件的患者被要求完成皮肤病生活质量指数（DLQI）和一份旨在收集相关患者特征的特定研究问卷。
支持小组成员和非成员的平均DLQI得分相似（分别为7.1±5.4和6.0±6.5；P值为0.2），尽管支持小组成员报告的整体疾病更严重，且身体暴露部位的疾病严重程度增加。支持小组参与者中非洲裔美国人与白种人的比例以及失业率均显著更高。
样本量小可能限制了该研究展示支持小组参与者与对照组之间差异的能力。
尽管支持小组参与者中生活质量较差指标的患病率有所增加，但生活质量相似，这表明支持小组成员身份具有保护作用。
《皮肤药物杂志》2017年；16(4):344 - 350。
