Nuñez Alicia, Holland Jason M, Beckman Lisa, Kirkendall Abbie, Luna Nora
Department of Psychology, University of Nevada, Las Vegas, Nevada.
Department of Clinical Psychology, William James College, Newton, Massachusetts.
Palliat Support Care. 2019 Apr;17(2):150-158. doi: 10.1017/S1478951517000190. Epub 2017 May 2.
As the older U.S. population becomes more ethnically diverse, there will be an increased need for culturally sensitive hospice care services. Hispanics often experience multiple barriers to quality end-of-life care services.
To address the underlying disparities in the cultural, emotional, and spiritual aspects of hospice care, the objective of the present qualitative study was to examine the emotional and spiritual needs of Hispanic patients' families while in hospice.
Semistructured in-person interviews were conducted with 29 Hispanic patients' families regarding their perceived experience of the hospice-based emotional and spiritual support received. Demographic information was collected on both the family member and the patient. Interviews were digitally recorded, transcribed, and analyzed using thematic content analysis.
Participant narratives fell into five main themes: (1) the influence of Hispanic culture in the relationship with hospice care providers; (2) types of social support received from hospice; (3) barriers to receiving support; (4) lack of health literacy regarding hospice care; and (5) cultural preferences for religious/spiritual support in hospice.
Our results provide insight into the specific emotional and spiritual needs of Hispanic families receiving hospice services. Our findings highlight that cultural values play an important role in the hospice care experiences of Hispanic families.
随着美国老年人口的种族日益多样化，对具有文化敏感性的临终关怀服务的需求将会增加。西班牙裔人群在获得高质量的临终关怀服务方面常常面临多重障碍。
为了解决临终关怀在文化、情感和精神层面的潜在差异问题，本定性研究的目的是调查西班牙裔患者家庭在接受临终关怀期间的情感和精神需求。
对29个西班牙裔患者家庭进行了半结构化的面对面访谈，了解他们对所接受的基于临终关怀的情感和精神支持的感知体验。收集了家庭成员和患者的人口统计学信息。访谈进行了数字录音、转录，并采用主题内容分析法进行分析。
参与者的叙述主要分为五个主题：（1）西班牙裔文化对与临终关怀服务提供者关系的影响；（2）从临终关怀机构获得的社会支持类型；（3）获得支持的障碍；（4）对临终关怀缺乏健康素养；（5）在临终关怀中对宗教/精神支持的文化偏好。
我们的结果为接受临终关怀服务的西班牙裔家庭的具体情感和精神需求提供了见解。我们的研究结果突出表明，文化价值观在西班牙裔家庭的临终关怀体验中起着重要作用。
