Cavers Debbie, Cunningham-Burley Sarah, Watson Eila, Banks Elspeth, Campbell Christine
The Usher Institute of Population Health Sciences and Informatics, Medical School, University of Edinburgh, Edinburgh, UK.
Faculty of Health and Life Sciences, Oxford Brookes University, Oxford, UK.
BMJ Open. 2017 May 9;7(5):e013383. doi: 10.1136/bmjopen-2016-013383.
There are an increasing number of people living with and beyond cancer, whose experience is further complicated by additional long-term health conditions in the context of an ageing population. The supportive care needs of this growing patient group should be recognised and addressed. There is a need to explore the experience of living with cancer and comorbid illness in order to develop optimal models of patient-centred care. This protocol describes a systematic review that aims to identify the qualitative evidence relating to the experience of cancer and comorbid illness for patients, informal carers and professionals, and to highlight areas where more research is needed.
A systematic review following PRISMA guidance will be undertaken. Medline, Embase, CINAHL, PsycINFO, ASSIA, Sociological Abstracts, Web of Science, SCOPUS, OpenGrey and ProQuest Dissertations and Theses Global databases will be systematically searched for articles relevant to patient, carer and professional experiences. Two independent reviewers will screen articles for inclusion and evaluate them according to the Critical Appraisal Skills Programme tool. Extracted data will be combined using recognised methods of qualitative synthesis to offer new insights into the topic area and for a patient-centred model of care.
The review does not require formal ethical review as no direct patient contact or patient identifiable data is used. Conduct of the review has been approved internally by the University of Edinburgh Centre for Population Health Sciences Ethics Review Committee. Results of the review will be published in a generalist peer-reviewed journal and presented at a relevant conference in addition to informing subsequent empirical work by the authors on this topic area.
癌症幸存者及癌症康复者的数量日益增加,在人口老龄化的背景下,他们的经历因其他长期健康问题而变得更加复杂。这一不断壮大的患者群体的支持性护理需求应得到认可和解决。有必要探索癌症与合并症共存的经历,以建立以患者为中心的最佳护理模式。本方案描述了一项系统评价,旨在识别与患者、非正式照护者和专业人员的癌症及合并症经历相关的定性证据,并突出需要更多研究的领域。
将按照PRISMA指南进行系统评价。将系统检索Medline、Embase、CINAHL、PsycINFO、ASSIA、Sociological Abstracts、Web of Science、SCOPUS、OpenGrey和ProQuest Dissertations and Theses Global数据库,查找与患者、照护者和专业人员经历相关的文章。两名独立评审员将筛选纳入的文章,并根据批判性评价技能计划工具对其进行评估。提取的数据将使用公认的定性综合方法进行合并,以提供对该主题领域的新见解,并为以患者为中心的护理模式提供参考。
由于未使用直接的患者接触或可识别患者的数据,本评价无需进行正式的伦理审查。本评价的开展已获得爱丁堡大学人口健康科学伦理审查委员会的内部批准。评价结果将发表在一本普通的同行评审期刊上,并在相关会议上展示,此外还将为作者后续在该主题领域的实证研究提供参考。