Cheung Melissa Mei Yin, Saini Bandana, Smith Lorraine
a Faculty of Pharmacy , The University of Sydney , Camperdown , Australia.
J Asthma. 2018 Mar;55(3):284-293. doi: 10.1080/02770903.2017.1325492. Epub 2017 May 17.
As an art form, drawings can facilitate the tangible expression of patients' inner images and feelings in a range of health conditions. However, there are currently no published studies investigating adults' perspectives of asthma using drawings. This study aimed to explore how adults' drawings illustrate their perceptions and experiences of asthma.
Adults with asthma participated in a one-on-one drawing activity. Analysis was grounded in the participants' accounts of their drawing, which were examined alongside the relevant image. A coding approach was used to cluster thematic material and map the data according to the Common-Sense Model of Self-Regulation (CSM).
Eighteen participants took part. Three themes emerged: (1) asthma is constrictive and restrictive, (2) feeling alone, feeling different, and (3) the life journey of asthma. The drawings aligned with several domains of the CSM, in particular consequences. The images drawn by the participants and their subsequent discussions highlighted the prominence of the emotional burden of asthma.
The drawings provided powerful and evocative communication of the experience of asthma. Future research using drawings can further both healthcare professionals' and patients' understanding of the physical, social and emotional demands of living with asthma, and support the development of asthma self-management practices.
作为一种艺术形式，绘画能够促进患者在一系列健康状况下对其内心意象和感受进行切实表达。然而，目前尚无已发表的研究探讨成年人通过绘画对哮喘的看法。本研究旨在探究成年人的绘画如何阐释他们对哮喘的认知和体验。
患有哮喘的成年人参与了一项一对一的绘画活动。分析基于参与者对其绘画的描述，并结合相关图像进行审视。采用编码方法对主题材料进行聚类，并根据自我调节常识模型（CSM）对数据进行映射。
18名参与者参与了研究。出现了三个主题：（1）哮喘具有收缩性和限制性，（2）感到孤独、与众不同，（3）哮喘的生活历程。这些绘画与CSM的几个领域相符，尤其是后果领域。参与者所画的图像及其随后的讨论突出了哮喘情感负担的显著程度。
这些绘画有力且生动地传达了哮喘的体验。未来使用绘画的研究可以进一步增进医疗保健专业人员和患者对哮喘患者在身体、社会和情感方面需求的理解，并支持哮喘自我管理实践的发展。
