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母亲的心声:应对孩子最初的残疾诊断

Mothers' voices: Coping with their children's initial disability diagnosis.

作者信息

Bingham Ann, Correa Vivian I, Huber Jennifer J

机构信息

University of Nevada, Reno.

University of North Carolina at Charlotte.

出版信息

Infant Ment Health J. 2012 Jul;33(4):372-385. doi: 10.1002/imhj.21341. Epub 2012 May 3.

Abstract

For parents of infants and toddlers receiving a diagnosis of disability, a variety of responses may result. Yet, little is known about the specific ways families cope with the initial diagnosis. This qualitative study investigated 6 mothers' memories of their children's diagnoses. Mothers described their use of both palliative strategies (denying, questioning, and wishful thinking) and problem-solving strategies (searching for information, seeking social support, reframing, and seeking spiritual support) to cope with their children's initial diagnoses. The results of this study may improve professionals' understanding of parents' need for information and support at the time of initial diagnosis.

摘要

对于那些孩子被诊断为残疾的婴幼儿家长来说,可能会产生各种各样的反应。然而,关于家庭应对初次诊断的具体方式,我们却知之甚少。这项定性研究调查了6位母亲对其孩子诊断情况的记忆。母亲们描述了她们使用姑息策略(否认、质疑和一厢情愿的想法)和解决问题的策略(寻找信息、寻求社会支持、重新构建认知和寻求精神支持)来应对孩子的初次诊断。本研究结果可能会增进专业人员对家长在初次诊断时对信息和支持需求的理解。

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