Grönqvist Helena, Olsson Erik Martin Gustaf, Johansson Birgitta, Held Claes, Sjöström Jonas, Lindahl Norberg Annika, Hovén Emma, Sanderman Robbert, van Achterberg Theo, von Essen Louise
U-CARE, Department of Women's and Children's Health, Uppsala University, Uppsala, Sweden.
Department of Immunology, Genetics and Pathology, Experimental and Clinical Oncology, Uppsala University, Uppsala, Sweden.
J Med Internet Res. 2017 May 23;19(5):e173. doi: 10.2196/jmir.7310.
U-CARE is a multidisciplinary eHealth research program that involves the disciplines of caring science, clinical psychology, health economics, information systems, and medical science. It was set up from scratch in a university setting in 2010, funded by a governmental initiative. While establishing the research program, many challenges were faced. Systematic documentation of experiences from establishing new research environments is scarce.
The aim of this paper was to describe the challenges of establishing a publicly funded multidisciplinary eHealth research environment.
Researchers involved in developing the research program U-CARE identified challenges in the formal documentation and by reflecting on their experience of developing the program. The authors discussed the content and organization of challenges into themes until consensus was reached.
The authors identified 15 major challenges, some general to establishing a new research environment and some specific for multidisciplinary eHealth programs. The challenges were organized into 6 themes: Organization, Communication, Implementation, Legislation, Software development, and Multidisciplinarity.
Several challenges were faced during the development of the program and several accomplishments were made. By sharing our experience, we hope to help other research groups embarking on a similar journey to be prepared for some of the challenges they are likely to face on their way.
U-CARE是一个多学科电子健康研究项目，涉及护理科学、临床心理学、健康经济学、信息系统和医学等学科。该项目于2010年在一所大学从零开始设立，由一项政府倡议资助。在建立该研究项目的过程中，面临了许多挑战。关于建立新研究环境的经验的系统记录很少。
本文旨在描述建立一个由公共资金资助的多学科电子健康研究环境所面临的挑战。
参与开发U-CARE研究项目的研究人员在正式文件中确定了挑战，并反思了他们开发该项目的经验。作者们讨论了挑战的内容和组织方式，将其归纳为主题，直到达成共识。
作者们确定了15个主要挑战，其中一些是建立新研究环境时普遍面临的，一些是多学科电子健康项目特有的。这些挑战被归纳为6个主题：组织、沟通、实施、立法、软件开发和多学科性。
在项目开发过程中面临了若干挑战，也取得了一些成果。通过分享我们的经验，我们希望帮助其他踏上类似征程的研究团队为他们可能在途中遇到的一些挑战做好准备。
