a Dr. Jay Children's Grief Centre , Research & Evaluation , Toronto , Ontario , Canada.
b Lawrence S. Bloomberg Faculty of Nursing , University of Toronto , Toronto , Ontario , Canada.
Death Stud. 2018 Mar;42(3):184-194. doi: 10.1080/07481187.2017.1334009. Epub 2017 Jul 5.
Sibling relationships reflect a unique childhood bond, thus the impact on a sibling when a child is seriously ill or dying is profound. We conducted a prospective, longitudinal, qualitative study over 2 years using interpretive descriptive methodology to understand siblings' perspectives when a brother or sister was dying at home or in hospital. The insights from the 10 siblings revealed complex experiences, both personal and with the ill child, their families, and peers. These experiences were paradoxically sources of strain and of support, revealing the importance of validation and normalization in assisting siblings to successfully navigate the experience.
兄弟姐妹关系反映了一种独特的童年纽带,因此当孩子病重或病危时,对兄弟姐妹的影响是深远的。我们采用解释性描述方法进行了为期两年的前瞻性纵向定性研究,以了解当兄弟姐妹在家中或医院死亡时,他们的观点。这 10 位兄弟姐妹的观点揭示了复杂的经历,既有个人经历,也有与患病儿童、他们的家人和同龄人一起的经历。这些经历既是压力的来源,也是支持的来源,这表明在帮助兄弟姐妹成功应对这一经历时,确认和规范化非常重要。