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应对决策分歧:当儿童与父母意见相左时儿科医生的角色

Navigating Decisional Discord: The Pediatrician's Role When Child and Parents Disagree.

作者信息

Sisk Bryan A, DuBois James, Kodish Eric, Wolfe Joanne, Feudtner Chris

机构信息

Department of Pediatrics, St Louis Children's Hospital, St Louis, Missouri;

Department of Medicine, Washington University School of Medicine, St Louis, Missouri.

出版信息

Pediatrics. 2017 Jun;139(6). doi: 10.1542/peds.2017-0234. Epub 2017 May 12.

Abstract

From the time when children enter the preteen years onward, pediatric medical decision-making can entail a complex interaction between child, parents, and pediatrician. When the child and parents disagree regarding medical decisions, the pediatrician has the challenging task of guiding the family to a final decision. Unresolved discord can affect family cohesiveness, patient adherence, and patient self-management. In this article, we outline 3 models for the pediatrician's role in the setting of decisional discord: deference, advocative, and arbitrative. In the deference model, the pediatrician prioritizes parental decision-making authority. In the advocative model, the pediatrician advocates for the child's preference in decision-making so long as the child's decision is medically reasonable. In the arbitrative model, the pediatrician works to resolve the conflict in a balanced fashion. Although each model has advantages and disadvantages, the arbitrative model should serve as the initial model in nearly all settings. The arbitrative model is likely to reach the most beneficial decision in a manner that maintains family cohesiveness by respecting the authority of parents and the developing autonomy of children. We also highlight, however, occasions when the deference or advocative models may be more appropriate. Physicians should keep all 3 models available in their professional toolkit and develop the wisdom to deploy the right model for each particular clinical situation.

摘要

从儿童进入青春期前阶段开始,儿科医疗决策就可能涉及儿童、父母和儿科医生之间复杂的互动。当儿童和父母在医疗决策上意见不一致时,儿科医生面临着引导家庭做出最终决策这一具有挑战性的任务。未解决的分歧会影响家庭凝聚力、患者依从性和患者自我管理。在本文中,我们概述了儿科医生在决策分歧情况下所扮演角色的三种模式:顺从模式、支持模式和仲裁模式。在顺从模式中,儿科医生将父母的决策权置于优先地位。在支持模式中,只要儿童的决策在医学上合理,儿科医生就会在决策中支持儿童的偏好。在仲裁模式中,儿科医生努力以平衡的方式解决冲突。尽管每种模式都有优缺点,但仲裁模式几乎在所有情况下都应作为初始模式。仲裁模式很可能以一种通过尊重父母的权威和儿童不断发展的自主权来维持家庭凝聚力的方式达成最有利的决策。然而,我们也强调了顺从模式或支持模式可能更合适的情况。医生应在其专业工具包中备有所有这三种模式,并培养出为每种特定临床情况部署正确模式的智慧。

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