Sagha Zadeh Rana, Eshelman Paul, Setla Judith, Sadatsafavi Hessam
1 Department of Design and Environmental Analysis, Cornell University, Ithaca, NY, USA.
2 Hospice of Central New York, Liverpool, NY, USA.
Am J Hosp Palliat Care. 2018 Mar;35(3):411-416. doi: 10.1177/1049909117711997. Epub 2017 Jun 2.
This ethnographic study draws on the experiences of members of interdisciplinary care teams working with end-of-life care patients to identify strategies to improve quality of life through care practices. We surveyed 133 staff and volunteers (physicians, physician assistants, nurse practitioners, registered nurses, social workers, chaplains, administrators, and volunteers) who provide end-of-life care to patients in both home and institutional settings for 4 organizations in 2 counties in Upstate New York. Survey responses were analyzed using qualitative content analysis. The results identified numerous strategies to enhance and safeguard quality of life for end-of-life care patients and their family members. These strategies can be categorized into 6 domains: organization philosophy and mission; organizational policies; caregivers' behaviors and practices; symptom management; facility design, operation and management; and patient, family member, and caregiver experience. The diverse list of identified strategies indicates that improving care to address the unique, complex, multilayered dimensions of quality of life at the end of life requires a multidisciplinary approach and consistency among care providers, including administration, clinical management, front-line caregivers, and support staff. When all of these strategies are used in harmony, care can truly be enhanced.
这项人种学研究借鉴了跨学科护理团队成员与临终关怀患者合作的经验,以确定通过护理实践提高生活质量的策略。我们调查了133名工作人员和志愿者(医生、医师助理、执业护士、注册护士、社会工作者、牧师、管理人员和志愿者),他们为纽约州北部两个县的4个组织中居家和机构环境中的患者提供临终关怀服务。使用定性内容分析法对调查回复进行了分析。结果确定了许多提高和保障临终关怀患者及其家庭成员生活质量的策略。这些策略可分为6个领域:组织理念和使命;组织政策;护理人员的行为和实践;症状管理;设施设计、运营和管理;以及患者、家庭成员和护理人员的体验。所确定的多样化策略清单表明,改善护理以应对生命末期生活质量独特、复杂、多层次的维度需要多学科方法以及护理提供者之间的一致性,包括行政人员、临床管理人员、一线护理人员和支持人员。当所有这些策略协调使用时,护理才能真正得到改善。