波兰版重症肌无力生活质量问卷（15项）的效度与信度
Validity and reliability of the Polish version of myasthenia gravis - Quality of life questionnaire - 15 item.
作者信息
Rozmilowska Izabela, Adamczyk-Sowa Monika, Pierzchala Krystyna, Czyzewski Damian
机构信息
Department of Neurology in Zabrze, Medical University of Silesia, ul. 3-go Maja 13-15, Zabrze 41-800, Poland.
Department of Neurology in Zabrze, Medical University of Silesia, ul. 3-go Maja 13-15, Zabrze 41-800, Poland.
出版信息
Neurol Neurochir Pol. 2017 Jul-Aug;51(4):311-318. doi: 10.1016/j.pjnns.2017.05.003. Epub 2017 May 24.
AIM
The myasthenia gravis-quality of life questionnaire 15 item (MG-QOL15) is a short, and easy to use disease-specific quality of life (QOL) tool in myasthenia gravis. The aim of this study was to validate and adapt the Polish version of the MG-QOL15.
MATERIALS AND METHODS
The total number of 50 patients with MG were qualified for the examination. Each patient underwent neurological examination and completed the quality of life evaluation questionnaire MQ-QOL 15 after translation and back-translation. Additionally, each patient was asked to evaluate the quality of his/her life by means of questionnaire SF-36 in Polish language version.
RESULTS
The MG-QOL15 was found to have high internal consistency, test-retest reliability, and concurrent validity.
CONCLUSION
The MG-QOL15 is accepted to be a valid, reliable, valuable tool for measuring disease-specific QOL in Polish patients with MG.
目的
重症肌无力生活质量问卷15项版（MG-QOL15）是一种用于重症肌无力的简短且易于使用的特定疾病生活质量（QOL）工具。本研究的目的是对MG-QOL15波兰语版本进行验证和改编。
材料与方法
共有50例重症肌无力患者符合检查条件。每位患者均接受了神经学检查，并在翻译和回译后完成了生活质量评估问卷MG-QOL 15。此外，每位患者还被要求通过波兰语版的SF-36问卷评估其生活质量。
结果
发现MG-QOL15具有较高的内部一致性、重测信度和同时效度。
结论
MG-QOL15被认为是一种有效、可靠且有价值的工具，可用于测量波兰重症肌无力患者的特定疾病生活质量。
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