Centre Ressources Autisme, CHRU, 39 Avenue Charles Flahaut, 34295, Montpellier, cedex 05, France.
Laboratoire Epsylon, University of Montpellier, EA 4556, 34000, Montpellier, France.
J Autism Dev Disord. 2017 Sep;47(9):2826-2837. doi: 10.1007/s10803-017-3197-y.
The impact of ASD on parental QOL was evaluated in the EpiTED cohort study at early adulthood. Two-third of parents of young adults with ASD (66.7%) reported that their QoL was at least moderately altered. The perceived impact of ASD on parental QoL was related to the young adults' level of adaptive skills, as well as to symptom severity and the presence of challenging behaviors, which appeared to be the main risk factor. The study of change between adolescence and early adulthood showed that parents whose children had a decrease in challenging behaviors perceived a decreased impact on their QoL. These results argue for the importance to propose specific interventions to target associated challenging behaviors in ASD.
ASD 对父母生活质量的影响在早期成年的 EpiTED 队列研究中进行了评估。三分之二的 ASD 青年患者的父母(66.7%)报告称他们的生活质量至少受到中度改变。父母对 ASD 对其生活质量的影响的感知与青年患者的适应技能水平、症状严重程度和存在挑战性行为有关,这些似乎是主要的风险因素。从青春期到成年早期的变化研究表明,其子女挑战性行为减少的父母认为对其生活质量的影响降低了。这些结果表明,有必要提出具体的干预措施来针对 ASD 中的相关挑战性行为。