Thyagarajan Balamurugan, Baral Vijay, Gunda Ranjit, Hart Denise, Leppard Lisa, Vollmer Brigitte
a Neonatal Unit, Princess Anne Hospital, University Hospital Southampton NHS Foundation Trust , Southampton , UK.
b Regional Neonatal Intensive Care Unit, St Michaels Hospital , Bristol , UK.
J Matern Fetal Neonatal Med. 2018 Oct;31(19):2527-2533. doi: 10.1080/14767058.2017.1346074. Epub 2017 Jul 11.
Hypothermia Treatment (HT) is now the standard care for neonatal hypoxic-ischaemic encephalopathy (HIE). We conducted a survey to explore parental perceptions of HT as there is little information about this in the current literature.
Postal questionnaire survey included families (n = 51) whose babies received HT at Princess Anne Hospital, Southampton, UK, with 23 questions covering communication, clinical management, follow-up, and care in general. Statistical analysis of descriptive and analytical tests were done using Minitab 16.
The response rate was 60.8%. All parents had concerns amongst which perceptions of pain and distress were described by 41%. Temporary concerns about bonding were common (83.8%), more so in babies transferred from other hospitals (p = .04). Only 61.3% felt they had a good understanding of HT. The need for improvements in the quality (71%) and frequency of communication (48.3%) were also highlighted.
Parents were worried about pain and distress, bonding and about outcomes after HT. Consistency in communication, regular updates, involvement of parents in decision making, strong support mechanisms and balanced discussions about long term outcomes at an early stage are of high importance to families whose babies undergo HT.
低温治疗（HT）目前是新生儿缺氧缺血性脑病（HIE）的标准治疗方法。我们开展了一项调查，以探究家长对低温治疗的看法，因为当前文献中关于这方面的信息很少。
邮寄问卷调查涵盖了在英国南安普敦安妮公主医院接受低温治疗的婴儿的家庭（n = 51），问卷有23个问题，涉及沟通、临床管理、随访及总体护理。使用Minitab 16对描述性和分析性测试进行统计分析。
回复率为60.8%。所有家长都有担忧，其中41%的家长提到了对疼痛和痛苦的看法。对母婴情感联结的暂时性担忧很常见（83.8%），从其他医院转来的婴儿中更为常见（p = 0.04）。只有61.3%的家长觉得他们对低温治疗有很好的了解。还强调了在沟通质量（71%）和沟通频率（48.3%）方面需要改进。
家长担心疼痛和痛苦、母婴情感联结以及低温治疗后的结果。对于接受低温治疗的婴儿的家庭来说，沟通的一致性、定期更新信息、让家长参与决策、强大的支持机制以及在早期对长期结果进行平衡的讨论非常重要。
