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支持家庭陪伴患有新生儿脑病和接受治疗性低温疗法的孩子。

Supporting families in their child's journey with neonatal encephalopathy and therapeutic hypothermia.

机构信息

Hope for HIE, PO Box 250472, West Bloomfield, MI, 48325, USA.

Neonatal and Pediatric Neurology, Tufts University School of Medicine, Maine Medical Partners Pediatric Neurology, 55 Spring St, Scarborough, ME, 04074, USA.

出版信息

Semin Fetal Neonatal Med. 2021 Oct;26(5):101278. doi: 10.1016/j.siny.2021.101278. Epub 2021 Sep 16.

Abstract

Neonates and families face challenges in hypothermic therapy, including trauma to parents, extreme emotions, and unfamiliarity with the medical system. Communication is an essential element to supporting parents while their children are in the NICU, and beyond, building the foundation for the ongoing relationship the family has with the medical system. Significant consideration needs to be given to the critical element of integrating the family into the care of a baby being treated with therapeutic hypothermia. Clinicians can promote healing of accumulated traumas of parents through ensuring parent's emotional safety, facilitating a trusting relationship, and promoting parent empowerment. Connecting parents with resources, especially peer support, is an essential part of a hospital stay. In this chapter, we explore best practices to support families during and after hypothermic therapy.

摘要

新生儿和家庭在接受低温治疗时面临挑战,包括父母受到创伤、情绪极端以及不熟悉医疗系统。在新生儿重症监护病房(NICU)中,以及在孩子出院后,沟通是支持父母的重要因素,为家庭与医疗系统建立持续关系奠定基础。在将家庭纳入接受治疗性低温治疗的婴儿护理中,需要充分考虑将家庭纳入护理这一关键要素。临床医生可以通过确保父母的情绪安全、建立信任关系和促进父母赋权来促进父母积累的创伤的愈合。将父母与资源(特别是同伴支持)联系起来是住院治疗的重要组成部分。在本章中,我们探讨了在低温治疗期间和之后支持家庭的最佳实践。

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