King Christian 10th Hospital for Rheumatic Diseases, Graasten, Denmark.
Department of Medicine and Health Technology, Aalborg University, Aalborg Øst, Denmark.
J Clin Nurs. 2017 Dec;26(23-24):4117-4128. doi: 10.1111/jocn.13940. Epub 2017 Sep 4.
To derive new conceptual understanding about how women with rheumatoid arthritis manage their illness, motherhood and paid work, based on a comprehensive overview of existing knowledge, gained from qualitative studies.
Rheumatoid arthritis affects several social aspects of life; however, little is known about how women with rheumatoid arthritis simultaneously manage their illness, motherhood and paid work.
Qualitative metasynthesis.
A qualitative metasynthesis informed by Noblit and Hare's meta-ethnography was carried out, based on studies identified by a systematic search in nine databases.
Six studies were included. Social interactions in the performance of three interdependent subidentities emerged as an overarching category, with three subcategories: subidentities associated with (1) paid work, (2) motherhood and (3) rheumatoid arthritis. Pressure in managing one of the subidentities could restrict the fulfilment of the others. The subidentities were interpreted as being flexible, situational, contextual and competing. The women strove to construct meaningful subidentities by taking into account feedback obtained in social interactions.
The subidentities associated with paid work and motherhood are competing subidentities. Paid work is given the highest priority, followed by motherhood and illness is the least attractive subidentity. Because of the fluctuating nature of the illness, the women constantly reconstruct the three interdependent subidentities.
When healthcare professionals meet a woman with rheumatoid arthritis, they should consider that she might not accept the subidentity as an ill person. Health professionals should not expect that women will prioritise their illness in their everyday life. This could be included in clinical conversation with the women.
基于对定性研究中现有知识的全面综述,从新概念上了解类风湿关节炎女性如何管理疾病、母性和有薪工作。
类风湿关节炎会影响生活的多个社会方面;然而,对于类风湿关节炎女性如何同时管理疾病、母性和有薪工作,我们知之甚少。
定性综合分析。
根据 Noblit 和 Hare 的元民族志进行定性综合分析,基于在九个数据库中进行的系统搜索确定研究。
纳入了六项研究。在执行三个相互依存的亚身份时的社会互动,作为一个总体类别出现,有三个亚类别:与(1)有薪工作、(2)母性和(3)类风湿关节炎相关的亚身份。管理其中一个亚身份的压力可能会限制其他身份的实现。这些亚身份被解释为灵活的、情境的、上下文的和竞争的。女性通过考虑在社会互动中获得的反馈,努力构建有意义的亚身份。
与有薪工作和母性相关的亚身份是相互竞争的亚身份。有薪工作是首要任务,其次是母性,疾病是最不受欢迎的亚身份。由于疾病的波动性,女性不断重建这三个相互依存的亚身份。
当医疗保健专业人员遇到患有类风湿关节炎的女性时,他们应该考虑到她可能不接受作为病人的亚身份。健康专业人员不应期望女性将疾病视为日常生活中的优先事项。这可以包含在与女性的临床对话中。