Hunt Xanthe, Watermeyer Brian
a Department of Psychology , Stellenbosch University , Stellenbosch , South Africa.
b Department of Rehabilitation Science , University of Cape Town , Cape Town , South Africa.
Glob Health Action. 2017;10(1):1337355. doi: 10.1080/16549716.2017.1337355.
In low- and middle-income countries (LMICs), limited access to a range of supports means that families often carry primary responsibility for the care of a disabled child. The impact of this responsibility is poorly understood.
To present a selective review, critique, and comparison of the prominent areas of research aimed at understanding families with disabled children in the Global South.
We compare and critically discuss prominent bodies of literature concerning the family-disability-poverty nexus in LMICs.
Three prominent bodies of literature concerned with families with a disabled child in LMICs are reviewed. These were selected based on their relative prevalence in a large review of the literature, and comprise (1) work concerning quality of life (FQOL) of families with a disabled child; (2) interventions aimed at supporting families with a disabled child in LMICs; and (3) the ways in which culture mediates the families' experience of disability. FQOL research points to poverty as a primary source of family distress, and directs our focus towards families' own expertise in coping with their circumstances. Intervention literature from LMICs highlights the family as the unit of analysis and praxis concerning disabled children, and reminds us of the contextual factors which must be considered when working with their families.
Culturally oriented research on poverty, disability, and the family nuances our understanding of the locally-determined priorities of families with a disabled child in LMICs. All three research strands carry benefits, limitations and gaps. The complexity of understanding families with a disabled child in LMICs comes to the fore, directing us away from narrow application of any single theoretical or research framework. Future researchers may draw on insights provided here in creating a more integrated approach.
在低收入和中等收入国家（LMICs），获得一系列支持的机会有限，这意味着家庭通常承担照顾残疾儿童的主要责任。这种责任的影响鲜为人知。
对旨在了解全球南方残疾儿童家庭的主要研究领域进行选择性回顾、批判和比较。
我们比较并批判性地讨论了关于低收入和中等收入国家家庭-残疾-贫困关系的重要文献。
回顾了与低收入和中等收入国家残疾儿童家庭相关的三个重要文献领域。这些是根据它们在大量文献综述中的相对普遍性选择的，包括（1）关于残疾儿童家庭生活质量（FQOL）的研究；（2）旨在支持低收入和中等收入国家残疾儿童家庭的干预措施；（3）文化调节家庭残疾经历的方式。FQOL研究指出贫困是家庭痛苦的主要来源，并将我们的注意力引向家庭自身应对处境的专业知识。来自低收入和中等收入国家的干预文献强调家庭是残疾儿童分析和实践的单位，并提醒我们在与他们的家庭合作时必须考虑的背景因素。
关于贫困、残疾和家庭的文化导向研究细化了我们对低收入和中等收入国家残疾儿童家庭当地确定的优先事项的理解。所有这三个研究方向都有好处、局限性和差距。在低收入和中等收入国家理解残疾儿童家庭的复杂性凸显出来，使我们不再局限于任何单一理论或研究框架的狭隘应用。未来的研究人员在创建更综合的方法时可以借鉴这里提供的见解。
